Helping children Day by day

Vasya was born such a healthy, such a sweet baby... 🌟 Everything was fine, and we were happy, because our little miracle child grew and developed like all children. But from 8-10 months we began to notice that something was wrong... 😢 He began to lag behind in physical development: he started walking late, often fell, got tired faster than others. On playgrounds, he couldn't climb the children's slide, didn’t ride a scooter or a bike like all children... It was so painful to see that he couldn’t do what every baby does! 💔We turned to doctors, neurologists, took massage courses, drank nootropics, but all this did not bring the long-awaited improvements. And one day, when Vasya started having long-term gastroenteritis, we took tests, and the results were terrible... 😱 The ALT (alanine aminotransferase) and AST (aspartate aminotransferase) levels were abnormally high, and the doctors suspected hepatitis. But that was just the beginning. It soon turned out that we had even more terrible news: we suspected muscular dystrophy... 😢 We took a genetic test, and the results were a terrible sentence... It was the diagnosis: Duchenne muscular dystrophy. I couldn't believe it... My heart broke when I heard these words... 💔From that moment on, everything changed. Our world turned upside down. But even in this crazy and terrible world, a glimmer of hope appeared. 🌈 In 2023, the Elevidys gene therapy was developed, which can stop this terrible disease. It helps to "correct" the gene that is responsible for the production of the dystrophin protein. This treatment can save our baby's life! 💖But here's the problem... We don't fall under the age restrictions, because Vasya is already 7 years old, and the "Circle of Good" foundation purchases the gene therapy only for children aged 4 to 6. 😔 We are beyond the limit, and this opportunity is literally slipping away from us... But we found a clinic in the UAE, in Dubai, at Medcare Women & Children's Hospital, which is ready to provide treatment at our expense. At the clinic, the cost of treatment is 1,200,000 rubles. We need to raise this amount as soon as possible. Every minute counts... If Vasya ends up in a wheelchair, the medicine will no longer help. 😞💔Now Vasya can still move, but his strength is fading. He can't walk long distances, he needs help on the stairs to get dressed and undressed... When we first learned about the diagnosis, we had to take Vasya out of kindergarten because he couldn't cope with the physical activity. He often fell, and I saw how much pain and hard it was for him. 😓 But Vasya doesn’t give up! He attends pre-school classes, works with a speech therapist, goes to the pool… But every day it hurts me so much to watch him suffer, to see him say: “Mom, I’m tired…” 😢Our Vasya is the most affectionate, kind and gentle boy. 🌷 He is always ready to hug and share joy. He loves to make up fairy tales, especially about dragons, and watches cartoons about animals and space with great interest. 🌌 He adores his dog Lisa, he is always the first to grab the leash, walk her, play with her! 🐶 But the worst thing for me is that Vasya, like any other child, loves to walk. But very soon he may lose this opportunity, and I can’t imagine how it will be… 😭 I see how he suffers, climbing the stairs, and his every word “Mom, I’m tired…” pierces my heart like a knife… 💔I don’t know how to live with this pain and hopelessness, but I can’t give up. I will fight for my son until the very end! 💪 I believe that a miracle is possible! 🌟 When I learned about the possibility of saving Vasya, my heart warmed again. Maybe this world is not so cruel if we fight and don’t give up! 🌈I ask you to help us, help to save Vasya. His life depends on this treatment, and I believe that together we can work a miracle! 🙏💖

My son is only 8 years old. He is a child who should enjoy life, play, run, dream. But instead of it, every second he fights a disease that is destroying his body, his future, his life. He has Duchenne muscular dystrophy, a rare and terrible genetic disease that slowly and inexorably destroys his muscles. 😞

At first, we didn’t understand what was happening. He couldn’t get up from the floor, he couldn’t climb the stairs, he couldn’t run like other kids. We thought it was temporary, that it was just some little illness that would pass. But we were wrong. Every day his condition worsened, and the diagnosis we heard took away my last hope — Duchenne muscular dystrophy. 😔

This disease is merciless. It takes away everything from my son: strength, movement, freedom. He can’t lift his arms, he can’t run, he can’t just play with his friends. His muscles are slowly but surely deteriorating, and if we don’t start treatment immediately, he will lose everything — both the ability to walk and the opportunity to live like a normal child. We have found the only way that can give him at least a small chance for a normal life - this is the ELEVIDYS gene therapy, which can slow down the progression of the disease. It gives children with Duchenne muscular dystrophy the opportunity to move again, to live again. But this therapy costs 1,200,000 rubles. 😞

This medicine is very expensive for us. We cannot raise such a sum, and if we do not start treatment right now, it will be too late. Every day counts. Every day, if we do not get help, my life will be ruined, because I will lose my child. I will lose his chance for a normal life, for the childhood that he deserves. We cannot wait, his condition is getting worse every day. ⏳

He cannot wait any longer. He is already losing strength, and I cannot stop it. I cannot watch my son die before my eyes, because I cannot let him live. I beg you, help me! 🙏 Every donation you make is his life, it is his chance. He can't wait, he needs help right now. I don't know how much time we have. HELP before it's too late. 💔

💔 Death is standing next to us... We feel her breath... 💔

😢 I am Anna, my husband is Ilya. We are the parents of Darya - our long-awaited daughter! 👧💖 But her heart... Functionally, she has the only left ventricle... 💔

When I found out the diagnosis at 21 weeks of pregnancy, the doctors said: "Think about it... Is it worth it?" 😭 But is it possible not to wait for your child? We chose to fight! ✊🔥

A birth that was like a nightmare...

😨 Darya did not scream... Her heart was barely beating... 🫀💔 Atony, brain asphyxia, convulsions...

She hasn’t opened her eyes for two weeks... 😭😢

And then the worst thing happened... Her heart stopped. 💔💔💔

⏳ Clinical death... 2 minutes between life and death... ⏳ Doctors fought with all their might, and she came back... 😭🙏

Life hanging by a thread...

👶💔 Darya underwent 5 difficult surgeries... but her heart is too weak... 😢 One blood clot - and that's it... She won't survive...

Now her life is held on by a thin 3.5 mm shunt. This is too little... 💔 At any moment, something irreparable can happen... 😭

Time is running out... But we have a chance!

🆘 The only clinic in the world ready to save Darya is in Boston (USA)! 🇺🇸🏥

Pedro del Nido, a great cardiac surgeon, works there! He can give Darya a healthy heart! ❤️🙏

But without YOUR HELP – it’s impossible… 😢💔

🙏 Please, help to save Daryushka! 🙏💖

Death is near… We saw her face… 😭 But we are fighting! ✊🔥 Give our daughter a chance to live! 👧❤️

‼️ MY BABY IS DYING ‼️ HE IS ONLY 6 MONTHS OLD 💔👶 ACUTE LYMPHOBLASTIC LEUKEMIA ⚠️ BLOOD CANCER ⚠️ HE MAY NOT LIVE UNTIL TOMORROW 😭 My son's name is Salmon🧸 He was born on October 14, 2024 🎂And already in January 2025 we were told something terrible - cancer 😢 He is undergoing chemotherapy 💉, is in the Morozov hospital 🏥, his tiny body is weakening every day... Chemical therapy is destroying everything inside him. Side effects torment him every day 🤒 But without a bone marrow transplant 💔 there is no chance at all... The amount to save my child is 1.195,000 rubles 💰 For us, this is an impossible amount 😔Funds have already helped 🙏, but now we are in a hopeless situation, only you can help... 🆘🆘🆘 We are desperately asking for help! 🆘🆘🆘 Every kopeck you give is a drop of life for Salmon 🩸He's little... he shouldn't die... 💔👼 Please don't pass by... 👩👦 He's our only baby... our air, our soul... HELP SAVE HIS LIFE🙏😭💖 ❤️ SAVE HIS HEART. SAVE HIS LIFE ❤️