😭 🆘 My son has a fatal genetic 🧬 disease! Muscles are atrophying! There is no time! Duchenne myopathy 💙 🆘 😭. Purpose of fundraising😭 🆘 Mój syn ma śmiertelną chorobę genetyczną! Mięśnie zanikają! Nie ma czasu! Dystrofia mięśniowa Duchenne'a 💙 🆘 😭. Cel zbiórki😭 🆘 У моего сына смертельное генетическое 🧬 заболевание! Мышцы атрофируются! Времени нет! Миопатия Дюшенна 💙 🆘 😭.
Puryshev ViacheslavrPuryshev ViacheslavПурышев Вячеслав, 8 years old8 lat8 лет
😭 🆘 My son has a fatal genetic 🧬 disease! Muscles are atrophying! There is no time! Duchenne myopathy 💙 🆘 😭. Purpose of fundraising😭 🆘 Mój syn ma śmiertelną chorobę genetyczną! Mięśnie zanikają! Nie ma czasu! Dystrofia mięśniowa Duchenne'a 💙 🆘 😭. Cel zbiórki😭 🆘 У моего сына смертельное генетическое 🧬 заболевание! Мышцы атрофируются! Времени нет! Миопатия Дюшенна 💙 🆘 😭..
An expensive injection of the drug Elevidys!rDrogi lek Elevidys w formie zastrzyku!Дорогостоящий укол препарата Элевидис!
History
😭💔🆘 Our Slava is only 7 years old, but his life is a constant struggle for every step. From a very early age, he often stumbled, he walked like a duck, and only at the age of 7, we were given a terrible diagnosis - Duchenne muscular dystrophy. 😢 This disease takes everything from him - the ability to move, play, be a child. Every day for Slava is a work, and the consequences of this disease are very terrible. 😔
Now Slava cannot run, jump, it is difficult for him to climb the stairs. He gets tired in 15 minutes, his body is getting weaker. 😓 His heart and lungs are at risk, and if we don't get treatment, he may not live until next year. 😭 It's scary to imagine what will happen to him if we don't act right now. ❗
But there is a chance! 🙏 The drug Elevidys is the only hope that can stop the progression of the disease and give Slava a chance at a normal life. 💖 But its cost is too much for our family: 2,185,000 rubles. We cannot raise such an amount without your help. 😢
Please help us! 🙏 Slava may die if we don't do this treatment. This is a chance for life for our child! 💔💙
Every ruble and every repost is a chance to save his life. Help us, please! 🌟 We believe that with your help, Slava can become a healthy and happy child! 💖
Puryshev ViacheslavrPuryshev ViacheslavПурышев Вячеслав, 8 years old8 lat8 лет
😭 🆘 My son has a fatal genetic 🧬 disease! Muscles are atrophying! There is no time! Duchenne myopathy 💙 🆘 😭. Purpose of fundraising😭 🆘 Mój syn ma śmiertelną chorobę genetyczną! Mięśnie zanikają! Nie ma czasu! Dystrofia mięśniowa Duchenne'a 💙 🆘 😭. Cel zbiórki😭 🆘 У моего сына смертельное генетическое 🧬 заболевание! Мышцы атрофируются! Времени нет! Миопатия Дюшенна 💙 🆘 😭..
An expensive injection of the drug Elevidys!rDrogi lek Elevidys w formie zastrzyku!Дорогостоящий укол препарата Элевидис!
26000 $
26000 $