🥺🧬MY SON SUFFERS FROM TERRIBLE PAIN🧬🥺A RARE GENETIC DISEASE ⚠️ DUCHENNE DYSTROPHY ❣️I ASK YOU TO HELP SAVE MY SON BEFORE IT'S TOO LATE 😭🥺🧬MÓJ SYN CIERPI NA OGROMNY BÓL🧬🥺RZADKA CHOROBA GENETYCZNA ⚠️ MIOPATIA DUCHENNE’A ❣️ PROSZĘ O POMOC URATOWAĆ MOJEGO SYNA, ZANIM BĘDZIE ZA PÓŹNO 😭🥺🧬МОЙ СЫН МУЧАЕТСЯ ОТ УЖАСНЫХ БОЛЕЙ🧬🥺РЕДКОЕ ГЕНЕТИЧЕСКОЕ ЗАБОЛЕВАНИЕ ⚠️ МИОПАТИЯ ДЮШЕННА ❣️ПРОШУ ВАС ПОМОГИТЕ СПАСТИ СЫНА ПОКА СТАЛО НЕ ПОЗДНО 😭 лет
Stetsenko IvanStetsenko IvanСтеценко Иван, 8 years old8 lat8 лет
🥺🧬MY SON SUFFERS FROM TERRIBLE PAIN🧬🥺A RARE GENETIC DISEASE ⚠️ DUCHENNE DYSTROPHY ❣️I ASK YOU TO HELP SAVE MY SON BEFORE IT'S TOO LATE 😭🥺🧬MÓJ SYN CIERPI NA OGROMNY BÓL🧬🥺RZADKA CHOROBA GENETYCZNA ⚠️ MIOPATIA DUCHENNE’A ❣️ PROSZĘ O POMOC URATOWAĆ MOJEGO SYNA, ZANIM BĘDZIE ZA PÓŹNO 😭🥺🧬МОЙ СЫН МУЧАЕТСЯ ОТ УЖАСНЫХ БОЛЕЙ🧬🥺РЕДКОЕ ГЕНЕТИЧЕСКОЕ ЗАБОЛЕВАНИЕ ⚠️ МИОПАТИЯ ДЮШЕННА ❣️ПРОШУ ВАС ПОМОГИТЕ СПАСТИ СЫНА ПОКА СТАЛО НЕ ПОЗДНО 😭 лет.
ELEVIDYS gene therapy is required Medicare Women & Children Hospital Dubai UAE‼️Lek ELEVIDYS jest wymagany Szpital Medicare Women & Children w Dubaju, w Zjednoczonych Emiratach Arabskich‼️Требуется препарат ELEVIDYS Medicare Women & Children Hospital Dubai UAE‼️
History
My son is only 8 years old. He is a child who should enjoy life, play, run, dream. But instead of it, every second he fights a disease that is destroying his body, his future, his life. He has Duchenne muscular dystrophy, a rare and terrible genetic disease that slowly and inexorably destroys his muscles. 😞
At first, we didn’t understand what was happening. He couldn’t get up from the floor, he couldn’t climb the stairs, he couldn’t run like other kids. We thought it was temporary, that it was just some little illness that would pass. But we were wrong. Every day his condition worsened, and the diagnosis we heard took away my last hope — Duchenne muscular dystrophy. 😔
This disease is merciless. It takes away everything from my son: strength, movement, freedom. He can’t lift his arms, he can’t run, he can’t just play with his friends. His muscles are slowly but surely deteriorating, and if we don’t start treatment immediately, he will lose everything — both the ability to walk and the opportunity to live like a normal child. We have found the only way that can give him at least a small chance for a normal life - this is the ELEVIDYS gene therapy, which can slow down the progression of the disease. It gives children with Duchenne muscular dystrophy the opportunity to move again, to live again. But this therapy costs 1,200,000 rubles. 😞
This medicine is very expensive for us. We cannot raise such a sum, and if we do not start treatment right now, it will be too late. Every day counts. Every day, if we do not get help, my life will be ruined, because I will lose my child. I will lose his chance for a normal life, for the childhood that he deserves. We cannot wait, his condition is getting worse every day. ⏳
He cannot wait any longer. He is already losing strength, and I cannot stop it. I cannot watch my son die before my eyes, because I cannot let him live. I beg you, help me! 🙏 Every donation you make is his life, it is his chance. He can't wait, he needs help right now. I don't know how much time we have. HELP before it's too late. 💔
Stetsenko IvanStetsenko IvanСтеценко Иван, 8 years old8 lat8 лет
🥺🧬MY SON SUFFERS FROM TERRIBLE PAIN🧬🥺A RARE GENETIC DISEASE ⚠️ DUCHENNE DYSTROPHY ❣️I ASK YOU TO HELP SAVE MY SON BEFORE IT'S TOO LATE 😭🥺🧬MÓJ SYN CIERPI NA OGROMNY BÓL🧬🥺RZADKA CHOROBA GENETYCZNA ⚠️ MIOPATIA DUCHENNE’A ❣️ PROSZĘ O POMOC URATOWAĆ MOJEGO SYNA, ZANIM BĘDZIE ZA PÓŹNO 😭🥺🧬МОЙ СЫН МУЧАЕТСЯ ОТ УЖАСНЫХ БОЛЕЙ🧬🥺РЕДКОЕ ГЕНЕТИЧЕСКОЕ ЗАБОЛЕВАНИЕ ⚠️ МИОПАТИЯ ДЮШЕННА ❣️ПРОШУ ВАС ПОМОГИТЕ СПАСТИ СЫНА ПОКА СТАЛО НЕ ПОЗДНО 😭 лет.
ELEVIDYS gene therapy is required Medicare Women & Children Hospital Dubai UAE‼️Lek ELEVIDYS jest wymagany Szpital Medicare Women & Children w Dubaju, w Zjednoczonych Emiratach Arabskich‼️Требуется препарат ELEVIDYS Medicare Women & Children Hospital Dubai UAE‼️
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14500 $