Mikhailovskaya OliviyaMikhailovskaya OliviyaМихайловская Оливия, 8 years old8 lat8 лет
🥺Good day everyone☀️, I am the mother of Oliviya Mikhailovskaya. My girl turned 8 years old on January 07, 24🎀. And literally two weeks later we knew about something terrible... Oliviya was diagnosed with Acute Lymphoblastic Leukemia🩸😱. We found this out in Turkey (Istanbul). At that moment my heart sank from what I heard💔. We were forced to come to Istanbul for an examination,
Nothing bothered us for a month, we take a full CheckUp at the local clinic and get satisfactory tests, but a week later the cough comes back.
On January 30, 24 we take a full blood count (extended) and the blood counts are critical, we come to the hematology department of the 2nd children's city hospital, but they tell us that they will admit us only in 3-5 days, as we need to treat the cough. (and this is with zero blood counts).
In a panic, worrying about the life of the child, within a few hours (February 01, 2024) we decide to fly to the Istanbul Acibaden Altunizade clinic, where there is a strong pediatrics department, in order to fully examine the child and find the cause of frequent colds.
And already on February 02, 24, after all the tests and a spinal tap, we were diagnosed. Leukemia. Acute Lymphoblastic Leukemia 85% damage. (Blood cancer)
We were forced to stay in the Istanbul clinic, as the blood counts dropped to the lowest level and the flight was impossible, any virus is fatal.
Also, having talked with the doctors, we realized that treatment was needed immediately, there is a strong professor for our diagnosis. After my question, if there is sens in such a difficult treatment for a child, because it is both pain and fear ... or maybe it is better to spend the last months at home and devote them to my daughter. Tears simply flowed. But they gave an unambiguous answer that it is treatable and they give 93% recovery and remission to children. We made a decision and stayed. But the clinic presented a very large bill 14500$. For us, such a sum is unaffordable. My daughter is terminally ill, cancer is burning her. I beg you, help me save my daughter.😭🙏🏻🆘
Ivko ViktorIvko VictorИвко Виктор, 8 years old8 lat8 лет
🆘 ❕Diagnosis Duchenne muscular dystrophy is insidious and it has its own clear plan to destroy the child.
THAT'S WHY I SCREAM EVERY DAY, I ASK, I BEG - NO TIME LEFT.
🧬Now he is 8 years old and the disease is persistently sending its greetings, on the video I showed the key symptoms that Vityusha unfortunately already has:
The calf muscles are enlarged - and this is already the replacement of muscles with fatty tissue
Duck-footed gait - it seems as if he is waddling + walking on tiptoes
Hyperlardosis - you can see in the video how Vityusha's back is strongly arched.
Inability to run and jump - yesterday we played catch up with Vitya, this is the speed of an ordinary child who is just walking, but he cannot jump at all.
Falling for no reason at all - the heart just contracts, it is uncontrollable. Imagine how you constantly fall from your height onto your feet and butt. It hurts😭
Stairs - he can only climb up using the Govers maneuver: leaning his hands on his feet, he cannot get up from his left leg on his own now.
And the daily - "Mom, I'm tired" - this is also an insidious Duchenne, manifested by rapid fatigue.
😭ALL THIS COMES FROM MUSCLE WEAKNESS. DUCHENNES MYODYSTROPHY - the #1 killer of boys. is a chance to stop everything❕
And I want to tell you what Vityusha can't do or what he is deprived of when the diagnosis is a huge enemy...
He CAN'T squat like everyone else and look at bugs and spiders with children, for example, or just collect mosaics on the floor.
When he sees the stairs, I see horror in his eyes, because it is VERY HARD to climb, this is clearly visible in one of the latest videos.
He CAN’T climb in and out of a car on his own, the risk of falling out of it is very high.
Vitya CAN’T fully live the life of an ordinary child now, who needs to be everywhere and always, to be naughty, to try new things, he is only 8 years old, now is the time to enjoy the life in full.
In fact, it is very hard to watch, especially on some playground, when your child simply CANNOT climb onto a swing on his own, without the help of an adult😭
And he is only 8... and what next? And then, if we do not find help among all of you and do not raise these 2500000$ for a CHANCE to live a full life - it will only get worse. Then only a wheelchair and a lying position with a bunch of devices that support the heart and breathing. And then end...
I ask you for help, help close the fundraiser as quickly as possible❕🆘
Fedorov AndreyFedorov AndrejФёдоров Андрей, 5 years old5 lat5 лет
🙏 😭🆘 My name is Natasha, and my husband's name is Andrey. We live in St. Petersburg. We have three children. Andrey is the third long-awaited child. He was born on June 7, 2019.
Diagnosis: Congenital heart defects Hypoplasia of the left heart. Atresia of the mitral and aortic valves. Severe hypoplasia of the ascending aorta.
Complications: Left jugular vein thrombosis, left congenital anomaly of the heart structure and left bidirectional cavopulmonary anastomosis. Thrombosis of the femoral arteries and veins. Pulmonary hypertension.
Condition after surgery in the St. Petersburg State Healthcare Institution "CHILDREN'S CITY MULTIDISCIPLINARY CLINICAL SPECIALIZED CENTER OF HIGH MEDICAL TECHNOLOGIES” (Children's City Hospital No. 1)
St. Petersburg City:
1. Hybrid procedure 2019
2. Norwood and Glen operation 2019
3. Balloon angioplasty of aortic recoarctation 2019, 2020
The pregnancy was going well, but at 22 weeks, during a routine ultrasound, we unexpectedly saw that the left ventricle of the heart was much smaller than the right. We went to St. Petersburg, where Andryusha was given a terrible diagnosis: a severe heart defect: Hypoplasia of the left heart. It was a big shock for us. I never thought that this could happen to us! The cardiologist said that we needed to go through a 3-stage heart correction - Norwood - Glen - Fontan. We were sent to the Pediatric Academy to give birth. On June 7, 2019, Andryusha was born, he was immediately taken to intensive care, they only let him kiss him once. On the 5th day, Andryusha underwent Rashkind surgery, during which a stand was installed in the heart. He was in intensive care for a week, then we were transferred to the department together, I tried to feed him from a bottle. A week later, we were discharged. We returned to our city, bought a pulse oximeter to monitor the saturation, Andryusha had low saturation (oxygen level in the blood was at 85%, while normal indicators should be at least 95%), we had to constantly monitor it so that it did not decrease. When Andryusha turned 4 months old, we miraculously got to the Children's City Hospital No. 1. There, the best doctors performed the Norwood-Glen operation on Andryusha, the operation went according to plan. But after a while, it turned out that Andryusha's left vena cava was thrombosed in the heart, the entire left side from the neck to the chest was swollen. Andryusha was in intensive care, they could not take him off the ventilator for a very long time, he was fed through a tube that was inserted into his nose. I came to him in intensive care, held his hand, talked to him. It was very hard to see him suffer, from a cheerful, always smiling boy, he turned into a suffering child with an absent look. But finally, after a month and a half, Andryusha was transferred to the department, now we were together. Recovery was very difficult! They brought Andryusha to me with an oxygen mask, without a mask, the saturation was falling, with a tube, he stopped eating from a bottle, without a voice, because of the artificial ventilation, his voice practically disappeared, he cried very quietly and was always suffering, he was so bad that he could not sleep for a long time. Every three hours began with me trying to feed him from a bottle with formula, but he did not want to, he forgot how to swallow, I had to pour the formula into him through a tube. It was very hard, I practically did not sleep, but we managed. After two and a half months of trying to start eating from a bottle, we decided to try to start feeding him with porridge and jars of baby food from a spoon. And finally Andryusha began to eat, my joy knew no bounds! For the night, I bought a special bottle with a spoon and fed him porridge at night. Little by little, Andryusha recovered and we were authorized to go home, we stayed in the department for three and a half months.
The whole family met us at home, the children surrounded Andryusha with love and care and he began to develop like a normal child. At two years old, Andryusha fell ill with pneumonia, we were admitted to the 5th city hospital of St. Petersburg, we had already moved to St. Petersburg. There, Andryusha was diagnosed with the RS virus. Pneumonia and the RS virus greatly affected Andryusha's saturation, he could only lie on the bed, they even brought us an oxygen mask to breathe oxygen. He had a very hard time with this disease, there was even a moment when they wanted to put him in intensive care. After discharge, due to low saturation, we were admitted to the Children's City Hospital No.1, where Andryusha underwent angiography, they wanted to increase the branches in the heart so that it would be possible to perform a Fontan operation. But, unfortunately, nothing could be done, because the femoral arteries were thrombosed. Andryusha recovered and we were discharged home. In the winter of 2024, we were again hospitalized due to decreased saturation, because we caught a virus. When Andryusha is sick, saturation decreases, sometimes when there is a very strong virus or bacteria, it decreases to 60-70. Again we were admitted to the Children's City Hospital No. 1, where Andryusha again underwent angiography. This time, miraculously, the doctors were able to get into Andryusha's heart, but it turned out that he had high pressure in the pulmonary artery system
and small branches in the heart, so the Fontan operation is impossible!
We were sent home, being prescribed drug therapy.
Andryusha is growing up as a very inquisitive child! He is very kind and affectionate, constantly showering his mom and dad with kisses. He loves to spend time with his family at the dacha, where we plant, relax and swim together. He loves to go fishing with his beloved brother. First, they rummage through the entire area in search of worms, and then go to the pond. This year, Andryusha also learned to ride a bike, but, unfortunately, he cannot ride for a long time, he gets tired very quickly, and has to constantly stop to rest.
Andryusha really loves going to the pool, he learned to dive and swim with a noodle. But because of low saturation, he does not swim very much, he gets tired quickly, but he still likes it very much!
Andryusha's favorite animal is a cat, our cat is called Barsik! Andryusha loves him very much, lies down next to him and strokes him, and the cat purrs. Andryusha plays with the cat with a rope at the end of which is a mouse, the cat runs after the mouse, and Andryusha laughs.
"When I grow up, I will be a policeman to protect people from villains!" - says Andryusha!
Andryusha and I go to the rehabilitation center, where Andryusha has classes: therapeutic physical education: he really likes to do physical education and likes his teacher, whose name is also Andrey, he attracts Andryusha so much that he constantly laughs.
Ivanov MarkIwanow MarekИванов Марк, 3 years3 lata3 года
Good afternoon. I am the mother of my little and long-awaited son. At his young age, doctors diagnosed something terrible. At one and a half years old, Mark was diagnosed with CANCER 🥺 From a very active boy, Mark became bedridden, his legs and bladder failed. The boy was diagnosed with high-risk stage 4 neuroblastoma. Mark has come a long way. An operation to remove a spinal cord compression tumor, 6 blocks of chemotherapy, as well as removal of the adrenal gland and residual tumor, 2 high-dose chemotherapy with autologous bone marrow transplantation, 12 radiation therapies. With the help of caring people, he underwent 4 more blocks of immunotherapy, but unfortunately our son had a relapse. Now, to continue treatment, a very expensive drug called (Dinutuximab) immunotherapy is required. It costs 1,785,000 rubles. This is a very large amount for our family.
Yapparova ElizavetaYapparova ElizavetaЯппарова Елизавета, 8 years old8 lat8 лет
My name is Alena, and I am Liza Yapparova's mother. My baby is only 7 years old, but she has already experienced so much pain that no child should have…
Liza was born with a severe heart defect. But no one knew about it - neither the doctors, nor me. I was happy with her first smile, hugged her, not suspecting that every second the candle of life was dying out in her. We found out about the disease by accident - during a medical examination when my daughter was 2.5 months old. The doctor looked at her for a long time and then said: "Your child has a complex heart defect"... Like a knife in the heart. The world collapsed.
The next day, Liza was already in intensive care. I couldn't hug her, whisper that I was there. They took her away... 8 hours of surgery. 8 hours of waiting, prayer, fear that I would no longer see her alive... But she coped! 😭
But this was only the beginning. The second operation, the third... After the last one, Liza had complications. In intensive care, she was alone, among strangers, and I was behind the wall, hearing her cry, but nothing could help... When I finally returned to her, she sobbed for two hours - as if she was complaining that I did not protect her. It kills me from the inside...
Now Liza gets tired quickly, her breathing is low, she has heavy breathing. She cannot do things like other children, laugh, play. Her heart is getting weaker, and I'm scared to think what will happen if we don't succeed... 😢
💔 The only chance for salvation is an operation at Boston Children's Hospital.
The doctors are ready to accept us and perform the second stage of heart correction, which will allow Liza to live!
📌 The amount to be collected is 14 000$.
This is a lot of money for our family, but if we create a family, even if there are a few caring people, we can save Liza!
🙏 I beg you, help my daughter!
She wants to live so much... She definitely has a right to happy childhood without pain! 😭
Loginova NadezhdaLoginova NadezhdaЛогинова Надежда, 4 years old4 lata4 года
I am the mother of Nadya, my long-awaited, beloved girl... Just recently she has been the happiest child - laughing, dancing, hugging us with her strong arms. Now she can barely hold on... 😭
Acute lymphoblastic leukemia... These words sounded like a death sentence. Since then, our life has been pain, endless injections, terrible complications. Chemotherapy does not give the expected result... 😢 My baby is suffering, does not sleep at night from pain, thinning out in our eyes... She is afraid to look at herself in the mirror - there is no longer the same cheerful Nadya, but a weakened, tired child... 💔
The only hope is a bone marrow transplant. A donor has been found, but the operation and treatment in Turkey cost 1,625,000 rubles. We can't raise that amount of money on our own... And without a transplant, Nadya has no chance... 😭
I beg you, I implore you, save my girl! She's only four years old, she wants to live so much! Every day is a fight, and we won't win it without you... Help Nadya come back to life! 💔🙏
Miller DanielMiller DanielМиллер Даниэль, 6 years old6 lat6 лет
My son Daniel is fighting LIFE! 😢💔 He was diagnosed with stage 4 cancer with metastases in the lungs at the age of 3! 😱 We were diagnosed with terotoma! 😞 He was in a high-risk group and his condition was getting worse every day! This tumor could take his life at any moment! ⏳
We underwent a terrible operation, because the internal organs began to fail! 💔 The tumor was in the pelvis and filled the entire space, threatening the entire body! 😓 But we did not give up, and the operation was successful! 🙌 But this was only the beginning! 🚨
After the operation, Daniel underwent 4 courses of high-dose chemotherapy according to the PAI protocol, and we hoped that everything would be fine. 💪 There was a remission for a while, and we were happy that we had overcome the impossible! 😍 But during a follow-up examination, after a PET-CT scan, the tumor was found again in the same place! 😡😭 It was a shock that we did not expect!
When we contacted an oncosurgeon, we were told that urgent hospitalization was needed, but a repeat operation could be DANGEROUS! ⚠️ We couldn't help but act and decided to get a second opinion - in Turkey, at the Medikal Park clinic! There we donated tumor biomaterial, and the results shocked us! 😱 We were given a new diagnosis: Wilms tumor - a kidney tumor! 💔 But that was not the end!
Our tumor was not ordinary! It was located outside the kidneys, and there are NO MORE THAN 100 such cases in the world! 🤯 After careful examination, we learned that the tumor was located on the sciatic nerve of the left leg, and the operation could lead to COMPLETE failure of the motor function of this leg! 😔 We had to make a difficult decision: take a risk and have the operation, or stay in Turkey and not risk my son's life!
We stayed and chose safety! 🙏 The operation lasted 5 hours and was very complicated! ⚡ A neurosurgeon, an oncosurgeon and a professor took part in it. They used a neuromodulator, which allowed us to track the location of the nerves to avoid damaging them during the operation! 💉💪
The operation was successful! 🙌 But there was still a long difficult path ahead! After that, we sent the tumor material for histology and the diagnosis was confirmed: Wilms tumor stage 3! 😞 After that, we were prescribed 10 courses of radiation therapy and chemotherapy according to the American protocol SIOP 2020. 💉🔥 We have already undergone radiation therapy, and now we are continuing chemotherapy! 🙏 The prognosis is good, and we believe that Daniel will defeat this terrible disease! 💖
But we CANNOT cope without your help! 💔 Our family needs support to go all the way to the end! 🙏 If you have the opportunity to help, we will be IMMACULARLY grateful to you! 🙌💖
Each of your contributions is a chance for my son to oversome completely the disease! ⚡💪 Daniel is fighting for his life, and we cannot let him give up! We WILL NOT STOP until WE WIN! ✊
Tarakhtienko FedorTarakhtienko FedorТарахтиенко Фёдор, 11 years old11 lat11 лет
Dear friends! 💔😭Our Fedya is only 10 years old, and we live in the city of Samara. 😔 My boy has several serious diseases associated with trisomy of 8th chromosome. We have already been through many trials, and, thank God, we managed to solve the problems with congenital heart disease and kidney disease. But now, we have to fight for his life. 💔Fedya suffers from a terrible tumor in both ears - cholesteatoma, which destroys the ear canals and can lead to tragic consequences. 😢 He also has congenital atresia of the auditory canals and grade 3-4 hearing loss. Without urgent surgery, we risk not only losing his hearing, but also facing a threat to his life, because the tumor continues to grow, and if we do not intervene right now, the consequences can be fatal. ⏳😞Every day counts, and Dr.Roberson from the USA is ready to perform an operation that will help form an ear canal and remove the tumor. But, time, alas, is running out. 💔 It is important to act immediately to preserve the chance of hearing restoration and avoid a deadly threat. 😭The operations are scheduled for April 28 and October 2025 (the exact date is being specified), and the cost of both operations is 1,185,000 rubles. This is an incredibly large amount for us, and we simply cannot raise it in such a short time. We are asking for help because Fedya needs us and you! 🙏💖I don’t work because my whole life is dedicated to Fedya’s rehabilitation: hearing, speech, home schooling. We also have a daughter, 13 years old, and a husband who works alone, paying the mortgage for the apartment we moved into so that Fedya could study at a special school. 😔We really need your help. We can’t do it without you! 💔🙏 Everyone who responds can be part of saving our boy. Please help! Even a small contribution can give Fedya a chance for a healthy future. 💖🌟 PLEASE SUPPORT US. Time is running out, and we can’t afford to lose it! 😭💖
Puryshev ViacheslavrPuryshev ViacheslavПурышев Вячеслав, 8 years old8 lat8 лет
😭💔🆘 Our Slava is only 7 years old, but his life is a constant struggle for every step. From a very early age, he often stumbled, he walked like a duck, and only at the age of 7, we were given a terrible diagnosis - Duchenne muscular dystrophy. 😢 This disease takes everything from him - the ability to move, play, be a child. Every day for Slava is a work, and the consequences of this disease are very terrible. 😔
Now Slava cannot run, jump, it is difficult for him to climb the stairs. He gets tired in 15 minutes, his body is getting weaker. 😓 His heart and lungs are at risk, and if we don't get treatment, he may not live until next year. 😭 It's scary to imagine what will happen to him if we don't act right now. ❗
But there is a chance! 🙏 The drug Elevidys is the only hope that can stop the progression of the disease and give Slava a chance at a normal life. 💖 But its cost is too much for our family: 2,185,000 rubles. We cannot raise such an amount without your help. 😢
Please help us! 🙏 Slava may die if we don't do this treatment. This is a chance for life for our child! 💔💙
Every ruble and every repost is a chance to save his life. Help us, please! 🌟 We believe that with your help, Slava can become a healthy and happy child! 💖
Yarotskaya ZlataYarotskaya ZlataЯроцкая Злата, 5 years old5 lat5 лет
🙏🏻Our family is already 10 years old. From the very beginning of our relationship, we dreamed of a big friendly family, children and our own house❣️. Two years after the wedding, our son Damir was born🩵. The birth was very difficult, the boy was diagnosed with acute hypoxia. This is what caused his health problems. Damir has autism and the third degree of loss of health. Zlata was born in 2019. An absolutely healthy girl, "our darling". She grew up as an ordinary child. She went to kindergarten, loved to draw, sculpt, like a true little lady - do makeup and hair! Our happy life with a carefree childhood changed in the spring of 2024: on March 11, our daughter got sick, Zlata had a high temperature, we did not suspect anything. Fever is a fever. Plus, it is cold season. We went to the doctor. Tests, antibiotics - the doctor treated the child for a common cold. At the same time, the tests turned out to be bad - high ESR and protein in the urine. No one understood the reason, why neither antiviral drugs nor antibiotics work. A week later, Zlata had an ultrasound of the abdominal cavity. That's when our world collapsed. The doctor's conclusion indicated a suspicion of neuroblastoma with multiple metastases in the liver! On March 25, 2024, we were urgently hospitalized at the Republican Scientific and Practical Center for Children's Oncology, Hematology and Immunology. A number of examinations were carried out: tests, CT, CTA, MRI, ultrasound, tumor biopsy, bone marrow puncture ... Chemotherapy was prescribed under the NB-HR-2018 program and MIBG gamma - scintigraphy in St. Petersburg. I still remember my helplessness and panic, and the worst thing is the sick, exhausted eyes of my child. It is impossible to accept your child's illness, but Zlata's mood and desire to fight depend on us. Zlata is patiently undergoing treatment and believes in a speedy recovery. She dreams of seeing this world without pain and fear. After the 5th course, the child underwent surgery to remove the tumor, the operation was successful. Then scintigraphy in St. Petersburg. At the moment, her dad is next to her daughter, they are finishing the 6th course of chemotherapy. For Zlata and for the whole family, dad is a special person: he gives support, protection and love. Our girl has good positive dynamics. Fortunately, we live in Belarus and the treatment is free. But unfortunately, this is not enough. Neuroblastoma is very insidious and in most cases tends to return. In order to increase the chance of a relapse-free life, according to the results of the consultation, taking into account the high-risk group, Zlata is prescribed immunotherapy with Dinutuximab beta, which is not registered in our country and the cost of which is 190.000,00 EUR. This amount is very huge for our family. I pray and believe that people will help our daughter to have a chance for LIFE. It's always hard to ask, but when it comes to a child's life, it seems like it's not even up for discussion! Unfortunately, it happens that a priceless life has a price.
Fedorov AndreyFedorow AndrejФедоров Андрей, 5 years old5 lat5 лет
The pregnancy was going well, but at 22 weeks, during a routine ultrasound, we unexpectedly saw that the left ventricle of the heart was much smaller than the right. We went to St. Petersburg, where Andryusha was given a terrible diagnosis: a severe heart defect: Hypoplasia of the left heart. It was a big shock for us. I never thought that this could happen to us! The cardiologist said that we needed to go through a 3-stage heart correction - Norwood - Glen - Fontan. We were sent to the Pediatric Academy to give birth. On June 7, 2019, Andryusha was born, he was immediately taken to intensive care, they only let him kiss him once. On the 5th day, Andryusha underwent Rashkind surgery, during which a stand was installed in the heart. He was in intensive care for a week, then we were transferred to the department together, I tried to feed him from a bottle. A week later, we were discharged. We returned to our city, bought a pulse oximeter to monitor the saturation, Andryusha had low saturation (oxygen level in the blood was at 85%, while normal indicators should be at least 95%), we had to constantly monitor it so that it did not decrease. When Andryusha turned 4 months old, we miraculously got to the Children's City Hospital No. 1. There, the best doctors performed the Norwood-Glen operation on Andryusha, the operation went according to plan. But after a while, it turned out that Andryusha's left vena cava was thrombosed in the heart, the entire left side from the neck to the chest was swollen. Andryusha was in intensive care, they could not take him off the ventilator for a very long time, he was fed through a tube that was inserted into his nose. I came to him in intensive care, held his hand, talked to him. It was very hard to see him suffer, from a cheerful, always smiling boy, he turned into a suffering child with an absent look. But finally, after a month and a half, Andryusha was transferred to the department, now we were together. Recovery was very difficult! They brought Andryusha to me with an oxygen mask, without a mask, the saturation was falling, with a tube, he stopped eating from a bottle, without a voice, because of the artificial ventilation, his voice practically disappeared, he cried very quietly and was always suffering, he was so bad that he could not sleep for a long time. Every three hours began with me trying to feed him from a bottle with formula, but he did not want to, he forgot how to swallow, I had to pour the formula into him through a tube. It was very hard, I practically did not sleep, but we managed. After two and a half months of trying to start eating from a bottle, we decided to try to start feeding him with porridge and jars of baby food from a spoon. And finally Andryusha began to eat, my joy knew no bounds! For the night, I bought a special bottle with a spoon and fed him porridge at night. Little by little, Andryusha recovered and we were authorized to go home, we stayed in the department for three and a half months.
The whole family met us at home, the children surrounded Andryusha with love and care and he began to develop like a normal child. At two years old, Andryusha fell ill with pneumonia, we were admitted to the 5th city hospital of St. Petersburg, we had already moved to St. Petersburg. There, Andryusha was diagnosed with the RS virus. Pneumonia and the RS virus greatly affected Andryusha's saturation, he could only lie on the bed, they even brought us an oxygen mask to breathe oxygen. He had a very hard time with this disease, there was even a moment when they wanted to put him in intensive care. After discharge, due to low saturation, we were admitted to the Children's City Hospital No.1, where Andryusha underwent angiography, they wanted to increase the branches in the heart so that it would be possible to perform a Fontan operation. But, unfortunately, nothing could be done, because the femoral arteries were thrombosed. Andryusha recovered and we were discharged home. In the winter of 2024, we were again hospitalized due to decreased saturation, because we caught a virus. When Andryusha is sick, saturation decreases, sometimes when there is a very strong virus or bacteria, it decreases to 60-70. Again we were admitted to the Children's City Hospital No. 1, where Andryusha again underwent angiography. This time, miraculously, the doctors were able to get into Andryusha's heart, but it turned out that he had high pressure in the pulmonary artery system
and small branches in the heart, so the Fontan operation is impossible!
We were sent home, being prescribed drug therapy.
Andryusha is growing up as a very inquisitive child! He is very kind and affectionate, constantly showering his mom and dad with kisses. He loves to spend time with his family at the dacha, where we plant, relax and swim together. He loves to go fishing with his beloved brother. First, they rummage through the entire area in search of worms, and then go to the pond. This year, Andryusha also learned to ride a bike, but, unfortunately, he cannot ride for a long time, he gets tired very quickly, and has to constantly stop to rest.
Andryusha really loves going to the pool, he learned to dive and swim with a noodle. But because of low saturation, he does not swim very much, he gets tired quickly, but he still likes it very much!
Andryusha's favorite animal is a cat, our cat is called Barsik! Andryusha loves him very much, lies down next to him and strokes him, and the cat purrs. Andryusha plays with the cat with a rope at the end of which is a mouse, the cat runs after the mouse, and Andryusha laughs.
"When I grow up, I will be a policeman to protect people from villains!" - says Andryusha!
Andryusha and I go to the rehabilitation center, where Andryusha has classes: therapeutic physical education: he really likes to do physical education and likes his teacher, whose name is also Andrey, he attracts Andryusha so much that he constantly laughs.
After we were discharged home, we realized that we could not wait any longer, Andryusha is growing, he is already 5 years old. Every day, physical activity is becoming more and more difficult for him. Our cardiologist has said more than once that we might have to live like this, on Glen, but it is difficult to live like this, with age the saturation will drop even more and Andryusha's life will become very difficult and short!
I sent Andryusha's discharge reports with a request to consider the possibility of performing the Fontan operation to different clinics.
And only Pedro Del Nido, a world-famous cardiac surgeon with his team at Boston Children's Hospital (USA), having reviewed our examinations, believes that they WILL be ABLE to perform a single-ventricle correction of the defect for Andryusha, they see Andryusha as a candidate for the Fontan operation in 2 stages:
1. To improve blood flow to the left pulmonary artery.
2. Fontan operation
The goal of the Fontan operation is to reduce the excess volume preload on the single ventricle of the heart. If it is not done, Andryusha will begin to lag behind in physical and mental development and his life will be very short. Even now, due to low oxygen saturation, Andrey cannot walk or run for a long time, we have to push him around in a wheelchair.
But in order to have the surgery, we first need to restore the lungs!
We are a large family, we have three children, so we cannot pay for the surgery ourselves. In our family, only my husband works, he works as a foreman in a construction company. The approximate income in our family is 150,000 rubles. Since Andryusha does not go to kindergarten, I do not work, but I am with him all the time. The cost of the surgery is very high for our family, in a family with 3 children there are a lot of expenses and we also have to rent housing.
I beg you to help us! Do not pass by our trouble! Our only hope is that you will help us save our son! Andryusha is waiting for your help!
I do not object to the use of information about the child in the media.🆘
Novik AnnaNovik AnnaНовик Анна, 4 years old4 lata4 года
Hello everyone! My name is Inna, and I am the mother of little Anya. My daughter, who is only 4 years old, is terribly ill. She has a retroperitoneal neuroblastoma on the left with bone marrow damage. This is a terrible diagnosis which completely destroys our lives. 😔Anya does not deserve to fight for her life at such an age. She should be playing, laughing, and not suffering from the pain and torment that cancer causes her. Every day her condition is worsening, and if we do not get help now, she may not survive. 😞 We need urgent treatment.In order to save Anya's life, she needs to undergo a course of treatment with the expensive drug Dinutuximab-beta. We must get 20 ampoules of this drug, which cost 1,200,000 rubles. 💸 This is a colossal amount that we cannot raise on our own. 💔Every day for us is a fight to save her life. We are turning to you because Anya will not survive without your help. She doesn'tdeserve this fate, she should live, play and enjoy life like all children. 💖Please help us! 🙏 Every donation you make is a chance for Anya to overcome the disease and return to normal life. 🌟
Borisiuk IvanBorisiuk IvanБорисюк Иван, 14 years old14 lat14 лет
My name is Larisa, and I am the mother of my dear and beloved boy Ivan Borisiuk. 😢 My son is a real hero who has been fighting a terrible disease for almost 10 years. His story began in 2015, when he was only 4 years old. It was on his birthday, March 13, when our lives changed forever. 🎂Until that moment, Ivan was a healthy and active child. But in January 2015, he got sick, and after a long course of antibiotics, we decided to do an ultrasound. This was our terrible discovery - cancer in the retroperitoneal space. This moment came like a bolt from the blue, and I still remember the moment when we were told that our baby had cancer. 💔Ivan was immediately prescribed multiple courses of chemotherapy, surgery and radiation therapy. We hoped for a miracle, and it happened - remission! 🌈 We believed that we had won, but a few months later the disease returned... The relapse was a terrible shock for us, and it was unbearable. 💔When new complications started, we had to seek help abroad, in Spain. ✈️ The doctors there saved him, performed a complex surgery, installing plates in his spine, and we continued the fight with hope. We did antibody treatment and thought that everything would be fine... but in 2023, Ivan faced cerebral edema again, and it was another terrible moment. But we did not give up! We fought for his life, and he survived it again! 💪2024 brought us new difficulties. The relapse came back, and we found ourselves in a hopeless situation again. 💔 We chose antibody treatment in Belarus because it was cheaper, and we hoped that we would have the opportunity to continue the fight. But the examination results in March 2025 showed terrible news: the cancer had returned, the cells remained in the pelvic bones. 😢We are desperate... But we will not give up! We will fight for our boy, for his life, for his dreams! 💖 Ivan dreams of becoming a pilot, and this is his strength! ✈️ He wants to fly so much, and despite all the suffering, he continues to look to the future with hope! 🌈I beg you, I implore you, do not remain indifferent! 🙏 My son deserves to live, he deserves a chance for the future! Each of your donations is an opportunity for Ivan to return to his dream, to become who he dreams of being! 💖 Help him to overcome the disease and become a happy boy! 🌟 We will not give up! We will fight to the end! 💪
Timofeyev MaksimTimofeyev MaksimТимофеев Максим, 13 years old13 lat13 лет
My son, Maksim, he is only 13 years old, and he is on the verge of life and death. It is impossible to express in words, but I will try, because I cannot sit idly by. Time is relentless, and I'm afraid it's too late. Maksim has been suffering for a long time, but now his condition has become critical. We can't wait any longer. We are in the most desperate situation. 😢It all started a few months ago. We didn't know our boy was sick. He was active, loved to play, study and dreamed of the future. But then, problems started. At first, just strange headaches, and then everything started to get worse. Max began to lose coordination, couldn't hold a spoon properly, his speech became slurred. We thought it was just stress, fatigue... But everything turned out to be much worse. 😞After many examinations, tests and long waits, we received a diagnosis that shocked us. Doctors said he had Wernicke's encephalopathy - a disease that affects the brain and can lead to complete loss of consciousness, coma, and then death. It is a rare and deadly disease, and its progression is so fast that we can't keep up with it. I look at my son and understand that we don’t know how much time we have left. 😔Maksim’s condition is getting worse every day. He can lose consciousness at any moment, his brain is not getting enough oxygen, and every day it is becoming more and more difficult to understand who he is and what is wrong with him. He can no longer walk, his speech has become almost impossible to understand, he does not recognize me and cannot express his feelings. He is not the same as he was before. There is not even joy in his eyes, but just emptiness. 😭I cannot explain how painful it is to see your child suffering and you cannot help him. I am a mother, I must protect him, but I am powerless. We do not know how much time we have left. His life is in the hands of doctors, but they say that the chance of salvation is too small. Without treatment, Maksim has no future, and time is running out. ⏳We need urgent rehabilitation to give him at least a minimal chance of recovery. Doctors have prepared a rehabilitation plan that can help Maksim to restore his lost functions, restore speech, coordination and improve his brain condition. But this rehabilitation requires huge funds - 1,700,000 rubles. This amount is unaffordable for our family, and without your help we will not be able to raise this money. I ask you for help. I know that our situation is hopeless, but I can’t give up. We must fight for him. I must give him at least a small hope for salvation. If anyone who reads these words can help, please help. I can’t let my son go away so early. He deserves a chance for the future, he deserves to live, but we need time, and we don’t have enough of this time. 🙏 Maksim is my life. I am ready to give everything for him to survive. Every day is a fight. We can’t wait any longer. Please help us. 💔
Eremeyev AntonEremeyev AntonЕремеев Антон, 2 years old2 lata2 годика
In 2023, the second operation was performed - a bidirectional cavopulmonary anastomosis (Glenn operation), also on an open heart using a heart-lung machine, 7 days of intensive care on artificial ventilation. The child's saturation, after this operation, is within 87-88%. Six months after the operation, during the examination, it turned out that Anton had aortic recoarctation and narrowing of the left pulmonary and subclavian arteries. The child underwent endovascular surgery, in which the narrowed areas were inflated with a balloon. Now the child will have to undergo such operations every year, at least until he is five years old. In 2024, Anton also underwent such an operation. Due to the fact that we did not have time to pay the invoice this year, a similar operation is scheduled for July 2025. Considering 2 open-heart surgeries, this will be the fifth... The child is very active and inquisitive, but shortness of breath constantly bothers him, even when he just picks up the pace. He started walking only at 1 year and 4 months, after a course of massage and light gymnastics. With active movements, cyanosis of the face and nails appears. At such moments, my heart just stops... He is only 2 years old, and what next????? Fear entered our souls back in 2022, never letting go of its shackles... We realized one thing... It is not a fear when you yourself are sick. It is a fea when your child is sick, and you are powerless. Where can we get such an amount. The famous pediatric cardiac surgeon from the USA Pedro del Nido is ready to perform the third heart surgery. Children with such defects as hypoplastic left heart syndrome and a single functional ventricle are brought to him from all over the world. This is a chance for our child. We also need to solve the problem with the aorta and pulmonary artery. The cardiac surgeon from the USA wrote that the surgery must be performed before the age of 3. The Boston Children's Hospital clinic was not chosen by chance, because cardiac surgeon Pedro del Nido works there. Since cardio moms closely follow the news about children with similar defects, we have seen what miracles he works. The cardiac surgeon at Boston Children's Hospital cannot confirm what kind of surgery my son will have until the child undergoes the necessary examinations directly in the clinic and a 3D model of the heart is made. Due to the complexity of the anatomy of the aorta and arteries. Children with hypoplastic left heart syndrome have a harder time with surgeries and the postoperative period, as this is one of the most severe heart defects. The right ventricle, unfortunately, is not systemic and as powerful as the left. Considering that the United States has accumulated vast experience in such defects, there are people with such a defect who are already over 40 years old. There is also high-tech equipment, a different level of intensive care and the world-famous pediatric cardiac surgeon Pedro del Nido, who specializes in exactly this defect, like my son's. In Russia, unfortunately, there are no people with this defect over 18 years old. Just 10 years ago, such children died en masse, because, unfortunately, they could not be helped. And now, children who survive the first two operations are considered a miracle. In clinics, neither pediatricians nor specialized doctors are simply not ready for such patients ... Seeing saturation slightly more than 80, they do not understand how to behave. Over the past 2 years, they have tried to take our son to the hospital with oxygen 4 times. But it is absolutely prohibited to do this, thanks to the cardiac surgeon who instructed me and was in touch with me during the interstage period. We could have really lost the child, immediately can begin pulmonary hypertension and damage to the right side of the heart, which is the only one in the child that participates in the heart's work. Boston Children's Hospital calculated the costs of the operation and postoperative treatment and issued an invoice for 1,183,000 rubles. The amount is simply unaffordable for our large family, we have four children. Only my husband works. I am registered as a caregiver for Anton, he is considered as disabled until 18 years. I cannot send him to kindergarten, as he has 7 medications a day, scheduled by the hour, and his activity must be constantly monitored throughout the day. Dear donators, please help our son so that he lives a long and happy life. We beg you!