Vasya was born such a healthy, such a sweet baby... 🌟 Everything was fine, and we were happy, because our little miracle child grew and developed like all children. But from 8-10 months we began to notice that something was wrong... 😢 He began to lag behind in physical development: he started walking late, often fell, got tired faster than others. On playgrounds, he couldn't climb the children's slide, didn’t ride a scooter or a bike like all children... It was so painful to see that he couldn’t do what every baby does! 💔We turned to doctors, neurologists, took massage courses, drank nootropics, but all this did not bring the long-awaited improvements. And one day, when Vasya started having long-term gastroenteritis, we took tests, and the results were terrible... 😱 The ALT (alanine aminotransferase) and AST (aspartate aminotransferase) levels were abnormally high, and the doctors suspected hepatitis. But that was just the beginning. It soon turned out that we had even more terrible news: we suspected muscular dystrophy... 😢 We took a genetic test, and the results were a terrible sentence... It was the diagnosis: Duchenne muscular dystrophy. I couldn't believe it... My heart broke when I heard these words... 💔From that moment on, everything changed. Our world turned upside down. But even in this crazy and terrible world, a glimmer of hope appeared. 🌈 In 2023, the Elevidys gene therapy was developed, which can stop this terrible disease. It helps to "correct" the gene that is responsible for the production of the dystrophin protein. This treatment can save our baby's life! 💖But here's the problem... We don't fall under the age restrictions, because Vasya is already 7 years old, and the "Circle of Good" foundation purchases the gene therapy only for children aged 4 to 6. 😔 We are beyond the limit, and this opportunity is literally slipping away from us... But we found a clinic in the UAE, in Dubai, at Medcare Women & Children's Hospital, which is ready to provide treatment at our expense. At the clinic, the cost of treatment is 1,200,000 rubles. We need to raise this amount as soon as possible. Every minute counts... If Vasya ends up in a wheelchair, the medicine will no longer help. 😞💔Now Vasya can still move, but his strength is fading. He can't walk long distances, he needs help on the stairs to get dressed and undressed... When we first learned about the diagnosis, we had to take Vasya out of kindergarten because he couldn't cope with the physical activity. He often fell, and I saw how much pain and hard it was for him. 😓 But Vasya doesn’t give up! He attends pre-school classes, works with a speech therapist, goes to the pool… But every day it hurts me so much to watch him suffer, to see him say: “Mom, I’m tired…” 😢Our Vasya is the most affectionate, kind and gentle boy. 🌷 He is always ready to hug and share joy. He loves to make up fairy tales, especially about dragons, and watches cartoons about animals and space with great interest. 🌌 He adores his dog Lisa, he is always the first to grab the leash, walk her, play with her! 🐶 But the worst thing for me is that Vasya, like any other child, loves to walk. But very soon he may lose this opportunity, and I can’t imagine how it will be… 😭 I see how he suffers, climbing the stairs, and his every word “Mom, I’m tired…” pierces my heart like a knife… 💔I don’t know how to live with this pain and hopelessness, but I can’t give up. I will fight for my son until the very end! 💪 I believe that a miracle is possible! 🌟 When I learned about the possibility of saving Vasya, my heart warmed again. Maybe this world is not so cruel if we fight and don’t give up! 🌈I ask you to help us, help to save Vasya. His life depends on this treatment, and I believe that together we can work a miracle! 🙏💖

My son is only 8 years old. He is a child who should enjoy life, play, run, dream. But instead of it, every second he fights a disease that is destroying his body, his future, his life. He has Duchenne muscular dystrophy, a rare and terrible genetic disease that slowly and inexorably destroys his muscles. 😞

At first, we didn’t understand what was happening. He couldn’t get up from the floor, he couldn’t climb the stairs, he couldn’t run like other kids. We thought it was temporary, that it was just some little illness that would pass. But we were wrong. Every day his condition worsened, and the diagnosis we heard took away my last hope — Duchenne muscular dystrophy. 😔

This disease is merciless. It takes away everything from my son: strength, movement, freedom. He can’t lift his arms, he can’t run, he can’t just play with his friends. His muscles are slowly but surely deteriorating, and if we don’t start treatment immediately, he will lose everything — both the ability to walk and the opportunity to live like a normal child. We have found the only way that can give him at least a small chance for a normal life - this is the ELEVIDYS gene therapy, which can slow down the progression of the disease. It gives children with Duchenne muscular dystrophy the opportunity to move again, to live again. But this therapy costs 1,200,000 rubles. 😞

This medicine is very expensive for us. We cannot raise such a sum, and if we do not start treatment right now, it will be too late. Every day counts. Every day, if we do not get help, my life will be ruined, because I will lose my child. I will lose his chance for a normal life, for the childhood that he deserves. We cannot wait, his condition is getting worse every day. ⏳

He cannot wait any longer. He is already losing strength, and I cannot stop it. I cannot watch my son die before my eyes, because I cannot let him live. I beg you, help me! 🙏 Every donation you make is his life, it is his chance. He can't wait, he needs help right now. I don't know how much time we have. HELP before it's too late. 💔

My little girl, who is only 4 years old, is fighting for her life. Her life is already full of pain and fear, and I cannot come to terms with the fact that she has to go through these circumstances at such an age. 😢💔

It all started when she was very little. At first, nothing alarmed me, but soon I noticed that her eye began to look unusual - it began to glow, as if something was wrong inside. 👀 I immediately took her to the doctor, and we were sent for an examination. And then, we were told terrible words, from which the whole world collapsed. My daughter has retinoblastoma - eye cancer. This terrible disease can quickly spread and destroy everything. 😱

Doctors say that the tumor is too big, and we need to act urgently. In our country, they cannot guarantee that she will preserve her vision, and if she does not start treatment immediately, the tumor can metastasize and go to the brain. The only hope is an operation in Switzerland, where specialists with extensive experience are ready to help. 🏥👩⚕️ They are sure that there is an opportunity not only to save her vision, but also to defeat the disease. But the cost of treatment is 1,200,000 rubles. This amount is too much for us. 💸

Every day I live in fear that I might lose my daughter. Every day she suffers, but she doesn’t know that she is in danger of dying. 😢💔 She continues to smile, to play, but I see how much pain she is in, how hard it is for her, how her eyes are becoming more and more dim. I can’t let her leave my life. She is so young, so full of life and hope. 💖

I am turning to you because without your help we cannot save my girl. Every day, every hour counts. ⏳ We cannot wait. I beg you, help us! 🙏 Without your support, she will not survive. She deserves to live, play, enjoy life, and not suffer. 💕

Every donation you make is an opportunity for my daughter to beat cancer and preserve her vision. 🙌 Please help us to save her life! We believe that with your help she will be able to escape from the clutches of this terrible disease and enjoy life again. 🌟

My name is Larisa, and I am the mother of my dear and beloved boy Ivan Borisiuk. 😢 My son is a real hero who has been fighting a terrible disease for almost 10 years. His story began in 2015, when he was only 4 years old. It was on his birthday, March 13, when our lives changed forever. 🎂Until that moment, Ivan was a healthy and active child. But in January 2015, he got sick, and after a long course of antibiotics, we decided to do an ultrasound. This was our terrible discovery - cancer in the retroperitoneal space. This moment came like a bolt from the blue, and I still remember the moment when we were told that our baby had cancer. 💔Ivan was immediately prescribed multiple courses of chemotherapy, surgery and radiation therapy. We hoped for a miracle, and it happened - remission! 🌈 We believed that we had won, but a few months later the disease returned... The relapse was a terrible shock for us, and it was unbearable. 💔When new complications started, we had to seek help abroad, in Spain. ✈️ The doctors there saved him, performed a complex surgery, installing plates in his spine, and we continued the fight with hope. We did antibody treatment and thought that everything would be fine... but in 2023, Ivan faced cerebral edema again, and it was another terrible moment. But we did not give up! We fought for his life, and he survived it again! 💪2024 brought us new difficulties. The relapse came back, and we found ourselves in a hopeless situation again. 💔 We chose antibody treatment in Belarus because it was cheaper, and we hoped that we would have the opportunity to continue the fight. But the examination results in March 2025 showed terrible news: the cancer had returned, the cells remained in the pelvic bones. 😢We are desperate... But we will not give up! We will fight for our boy, for his life, for his dreams! 💖 Ivan dreams of becoming a pilot, and this is his strength! ✈️ He wants to fly so much, and despite all the suffering, he continues to look to the future with hope! 🌈I beg you, I implore you, do not remain indifferent! 🙏 My son deserves to live, he deserves a chance for the future! Each of your donations is an opportunity for Ivan to return to his dream, to become who he dreams of being! 💖 Help him to overcome the disease and become a happy boy! 🌟 We will not give up! We will fight to the end! 💪

Hello! My name is Biriuk Tatiana Ivanovna. I have two children (a son and a daughter). Today we will talk about my daughter, Violetta. Violetta was born on February 9, 2014 in the 2nd maternity hospital in Minsk. The birth was natural, without complications. Our daughter grew and developed well (all skills according to her age). When we went to kindergarten, like most children, she suffered from acute respiratory infections (usually otitis), without any complications. About the disease: It all started unexpectedly, on January 25, 2025, when our daughter Violetta had a stomach ache right at school. We urgently went to the hospital with suspected appendicitis. But what the doctors discovered by chance became our worst nightmare. An X-ray showed a tumor. At that moment, it seemed like the ground had gone out from under our feet. Urgent examinations began at the oncology center in Minsk. Then everything happened like in a nightmare: emergency examinations, CT, biopsy surgery, which, according to doctors, also had high risks. The result was a diagnosis of Ewing's sarcoma, a malignant tumor that threatens the life of our baby. The surgeons reported that the tumor was too large and could not be removed surgically. It was as if the world around us had stopped. We didn't give up. We started looking for a way out, and our hope came when an Israeli clinic agreed to accept us. They quickly gave a positive answer, and I felt: this is our chance. This is a chance for salvation, for the future, for life for our beloved baby. Now Violetta is already undergoing treatment in Israel and fights for her life every day. We took the first step in treatment in Israel: ✔️ we conducted the necessary examinations (MRI, X-rays) ✔️ we completed three chemotherapy cycles 🙏🏼But we still have a long way to go: ✔️completion of 6 chemotherapy cycles before the surgery ✔️the hardest part is the tumor removal surgery ✔️and then 6 more chemotherapy cycles after the surgery. I have to ask for help from everyone who is ready to help us to overcome this difficult path 🙏🏼❤️Every contribution, every word of support helps us to believe that our girl can overcome this disease. About Violetta: Violetta dances (modern style), plays the piano, sews leather goods, draws. She adores her friends. She loves sushi, which is now banned, and "Viennese" cake, which we can not find in Israel.

Hello everyone! My name is Inna, and I am the mother of little Anya. My daughter, who is only 4 years old, is terribly ill. She has a retroperitoneal neuroblastoma on the left with bone marrow damage. This is a terrible diagnosis which completely destroys our lives. 😔Anya does not deserve to fight for her life at such an age. She should be playing, laughing, and not suffering from the pain and torment that cancer causes her. Every day her condition is worsening, and if we do not get help now, she may not survive. 😞 We need urgent treatment.In order to save Anya's life, she needs to undergo a course of treatment with the expensive drug Dinutuximab-beta. We must get 20 ampoules of this drug, which cost 1,200,000 rubles. 💸 This is a colossal amount that we cannot raise on our own. 💔Every day for us is a fight to save her life. We are turning to you because Anya will not survive without your help. She doesn'tdeserve this fate, she should live, play and enjoy life like all children. 💖Please help us! 🙏 Every donation you make is a chance for Anya to overcome the disease and return to normal life. 🌟

My son, my beloved boy, is terminally ill. I can't find the words to describe the pain and despair. I feel every day, seeing him suffer. 😢 He is just a child, and he has to fight for his life, to fight a disease that no one should have to go through. 💔My son was diagnosed with acute leukemia. 😞 He is experiencing incredible pain, and I can't help him in any way. Every day, looking into his eyes, I understand that he is fighting not only for his life, but also for the opportunity to return to a normal childhood life, to games, joy and smiles. 🧸💖He needs a stem cell transplant, this is the only hope for salvation. 🌟 But this requires a huge amount of money - 1,085,000 rubles, and no matter how hard I try, I cannot raise this amount myself. 💸 We are asking you for help, because only with your support my son can survive. 🙏 I know that he needs urgent treatment, but we can’t do it without you. 🆘 He can’t wait, he can’t lose a day. Please help my boy survive this hell and start living again. 💫Each of your donations is not just money, it is a chance at life for my son. ❤️ We can’t do it without you. Please do not remain indifferent. He needs your help. 🙏

😭💔🆘 Our Slava is only 7 years old, but his life is a constant struggle for every step. From a very early age, he often stumbled, he walked like a duck, and only at the age of 7, we were given a terrible diagnosis - Duchenne muscular dystrophy. 😢 This disease takes everything from him - the ability to move, play, be a child. Every day for Slava is a work, and the consequences of this disease are very terrible. 😔

Now Slava cannot run, jump, it is difficult for him to climb the stairs. He gets tired in 15 minutes, his body is getting weaker. 😓 His heart and lungs are at risk, and if we don't get treatment, he may not live until next year. 😭 It's scary to imagine what will happen to him if we don't act right now. ❗

But there is a chance! 🙏 The drug Elevidys is the only hope that can stop the progression of the disease and give Slava a chance at a normal life. 💖 But its cost is too much for our family: 2,185,000 rubles. We cannot raise such an amount without your help. 😢

Please help us! 🙏 Slava may die if we don't do this treatment. This is a chance for life for our child! 💔💙

Every ruble and every repost is a chance to save his life. Help us, please! 🌟 We believe that with your help, Slava can become a healthy and happy child! 💖

Dear friends! 💔😭Our Fedya is only 10 years old, and we live in the city of Samara. 😔 My boy has several serious diseases associated with trisomy of 8^th chromosome. We have already been through many trials, and, thank God, we managed to solve the problems with congenital heart disease and kidney disease. But now, we have to fight for his life. 💔Fedya suffers from a terrible tumor in both ears - cholesteatoma, which destroys the ear canals and can lead to tragic consequences. 😢 He also has congenital atresia of the auditory canals and grade 3-4 hearing loss. Without urgent surgery, we risk not only losing his hearing, but also facing a threat to his life, because the tumor continues to grow, and if we do not intervene right now, the consequences can be fatal. ⏳😞Every day counts, and           Dr.Roberson from the USA is ready to perform an operation that will help form an ear canal and remove the tumor. But, time, alas, is running out. 💔 It is important to act immediately to preserve the chance of hearing restoration and avoid a deadly threat. 😭The operations are scheduled for April 28 and October 2025 (the exact date is being specified), and the cost of both operations is 1,185,000 rubles. This is an incredibly large amount for us, and we simply cannot raise it in such a short time. We are asking for help because Fedya needs us and you! 🙏💖I don’t work because my whole life is dedicated to Fedya’s rehabilitation: hearing, speech, home schooling. We also have a daughter, 13 years old, and a husband who works alone, paying the mortgage for the apartment we moved into so that Fedya could study at a special school. 😔We really need your help. We can’t do it without you! 💔🙏 Everyone who responds can be part of saving our boy. Please help! Even a small contribution can give Fedya a chance for a healthy future. 💖🌟 PLEASE SUPPORT US. Time is running out, and we can’t afford to lose it! 😭💖

💔 Death is standing next to us... We feel her breath... 💔

😢 I am Anna, my husband is Ilya. We are the parents of Darya - our long-awaited daughter! 👧💖 But her heart... Functionally, she has the only left ventricle... 💔

When I found out the diagnosis at 21 weeks of pregnancy, the doctors said: "Think about it... Is it worth it?" 😭 But is it possible not to wait for your child? We chose to fight! ✊🔥

A birth that was like a nightmare...

😨 Darya did not scream... Her heart was barely beating... 🫀💔 Atony, brain asphyxia, convulsions...

She hasn’t opened her eyes for two weeks... 😭😢

And then the worst thing happened... Her heart stopped. 💔💔💔

⏳ Clinical death... 2 minutes between life and death... ⏳ Doctors fought with all their might, and she came back... 😭🙏

Life hanging by a thread...

👶💔 Darya underwent 5 difficult surgeries... but her heart is too weak... 😢 One blood clot - and that's it... She won't survive...

Now her life is held on by a thin 3.5 mm shunt. This is too little... 💔 At any moment, something irreparable can happen... 😭

Time is running out... But we have a chance!

🆘 The only clinic in the world ready to save Darya is in Boston (USA)! 🇺🇸🏥

Pedro del Nido, a great cardiac surgeon, works there! He can give Darya a healthy heart! ❤️🙏

But without YOUR HELP – it’s impossible… 😢💔

🙏 Please, help to save Daryushka! 🙏💖

Death is near… We saw her face… 😭 But we are fighting! ✊🔥 Give our daughter a chance to live! 👧❤️

💔 Hello! My name is Svetlana, and I am the mother of 9-year-old Alisher (born on August 05, 2014). 💔

I don't know how to start, because every word comes out of my heart with pain 😢. My son, my little angel 👼, was a healthy and active child until the very day we were given this terrible diagnosis 😞... 💔 It all started with a simple sore throat, but it quickly turned into a real fight for life 💪. The lymph nodes in his neck swelled, and my husband and I couldn't understand what was happening 😔. When the doctors said that he had nasopharyngeal cancer with metastases in the neck, I couldn't believe my ears 😱.

Every day was a fight for us ⚔️, each treatment was a new challenge 🛑. We went through 6 courses of chemotherapy 💉 and 1 course of radiation therapy 🌞, but the disease did not stop 😓. After treatment, Alisher had pneumonia 😷, and when we took a coronavirus test, it was positive 😔. We thought we had survived the worst, but then it only got worse 😢. We all went through terrible fear for his life 😞 and lost hope for treatment in Russia, since we were denied further treatment 😔, and we were forced to leave for Israel 🇮🇱.

Here, at the Ichilov clinic, Alisher receives treatment and examinations, but we do not have enough funds 💸 to continue the fight ⚔️. We have no deposit funds, and we cannot raise the necessary amount for further treatment 😔.

Alisher is my life ❤️. He fights for his future every day, and I cannot watch him suffer 😭 without being able to help him 💔. 🙏 I am asking you to help us! Without you, we have no chance, but with your help we can win! 🙌

❤️‍🩹🆘😭💔 My girl is terminally ill, and I don’t have enough words to describe how painful it is for me to watch her suffer. I pray to God every day to give her strength! 😢🙏 My heart breaks when I see my baby suffering from unbearable pain. 😓 Her eyes are inflamed, and she cries because the pain doesn’t go away. And I have to see how she fights this horror every day, and I feel powerless. 💔😿

When we found out that my daughter had retinoblastoma in both eyes, I couldn’t believe that this had happened to us. 😭 It’s a cancer that takes lives, and she suffers from pain that gets worse every day. 😢💔

The doctors offered us only one option — to remove eyesl. But we can’t accept it. We found a clinic in Switzerland where there is a chance to save my daughter, to give her a chance at life and save her from suffering. 💖 But the treatment costs a huge amount — 2,175,000 rubles, and we don’t have that kind of money. 😞

Every day I’m afraid that I might lose my girl. 😭 She suffers and worries, and I can’t stop her pain. 😥 Please help us! Only with your help, we can defeat this terrible disease and give our girl a chance to live the full life. 🌟🙏💖

‼️ Cry for help! Please help to save Efim! 💔🙏

He has been fighting for life since birth. His heart ❤️ is weakened by illness, scarred by surgeries, but it still beats. From the first days of his life, he underwent several open-heart surgeries, went through intensive care, pain and fear.

But now his heart may stop. ⏳ The disease leaves him no choice - either treatment or death. An operation is needed urgently! 🚨 Doctors are ready to help, but we can't do it without your support.

The invoice for the salvation is 1,355,000₽. This amount is too much for our family, and there is less and less time left. ⏳ We beg for help! Without urgent treatment, Efim may not survive. Please help save his heart, help him to live! 🙏💖

🆘😭💔 It's unbearably painful and scary... My little, long-awaited girl, born healthy and happy, suddenly faced the most terrible disease imaginable. Everything that I once saw as bright and joyful now seems dull and scary. My little one, who was running and laughing yesterday, today suffers from unbearable pain... 😢

In 2023, after a routine examination, we learned that my girl had retinoblastoma of the right eye, the last stage - retinal cancer. 💔 Doctors shrug their shoulders, do not believe in a chance of salvation, and offer to remove the eye, but I cannot agree with this operation. In our city, two chemotherapy cycles were completed, but they did not help. My baby continues to suffer, and I cannot leave her in this condition! 😭

I can't let this disease take her away from us. I found a clinic in Switzerland where there is a chance that Kira will keep her eye and beat cancer. The clinic has sent us an invitation and a bill for treatment, the amount of which is 2,150,000 rubles, and I cannot raise such a sum on my own. 😓

I ask all kind people to help us, support us, please! We are fighting for my girl's life, and every contribution you make is a chance for her to stay with us. ❤️🙏 We can't do it without you!

I am the mother of Nadya, my long-awaited, beloved girl... Just recently she has been the happiest child - laughing, dancing, hugging us with her strong arms. Now she can barely hold on... 😭

Acute lymphoblastic leukemia... These words sounded like a death sentence. Since then, our life has been pain, endless injections, terrible complications. Chemotherapy does not give the expected result... 😢 My baby is suffering, does not sleep at night from pain, thinning out in our eyes... She is afraid to look at herself in the mirror - there is no longer the same cheerful Nadya, but a weakened, tired child... 💔

The only hope is a bone marrow transplant. A donor has been found, but the operation and treatment in Turkey cost 1,625,000 rubles. We can't raise that amount of money on our own... And without a transplant, Nadya has no chance... 😭

I beg you, I implore you, save my girl! She's only four years old, she wants to live so much! Every day is a fight, and we won't win it without you... Help Nadya come back to life! 💔🙏

My name is Alena, and I am Liza Yapparova's mother. My baby is only 7 years old, but she has already experienced so much pain that no child should have…

Liza was born with a severe heart defect. But no one knew about it - neither the doctors, nor me. I was happy with her first smile, hugged her, not suspecting that every second the candle of life was dying out in her. We found out about the disease by accident - during a medical examination when my daughter was 2.5 months old. The doctor looked at her for a long time and then said: "Your child has a complex heart defect"... Like a knife in the heart. The world collapsed.

The next day, Liza was already in intensive care. I couldn't hug her, whisper that I was there. They took her away... 8 hours of surgery. 8 hours of waiting, prayer, fear that I would no longer see her alive... But she coped! 😭

But this was only the beginning. The second operation, the third... After the last one, Liza had complications. In intensive care, she was alone, among strangers, and I was behind the wall, hearing her cry, but nothing could help... When I finally returned to her, she sobbed for two hours - as if she was complaining that I did not protect her. It kills me from the inside...

Now Liza gets tired quickly, her breathing is low, she has heavy breathing. She cannot do things like other children, laugh, play. Her heart is getting weaker, and I'm scared to think what will happen if we don't succeed... 😢

💔 The only chance for salvation is an operation at Boston Children's Hospital.

The doctors are ready to accept us and perform the second stage of heart correction, which will allow Liza to live!

📌 The amount to be collected is 14 000$.

This is a lot of money for our family, but if we create a family, even if there are a few caring people, we can save Liza!

🙏 I beg you, help my daughter!

She wants to live so much... She definitely has a right to happy childhood without pain! 😭

My Yanchik... My long-awaited, only son... 😢💖 His life has been full of pain and fear from the very beginning. When he was just born, we were told something terrible - his heart does not work as it should. 😭 This is a rare and terrible disease, and without urgent surgery, Yan may not survive... 💔

As a mother, I just can't believe it! 😭 Yanchik is so small, so defenseless, and he has already had to endure so much pain. He has undergone several operations, and each of them was a real nightmare for him. 😢 Every time he wakes up from anesthesia, I just beg God for him to be alive... 😔

💔🆘🙏 Our little girl is on the verge of life and death, and we cannot stand aside. CANCER is progressing every day, taking away her strength and hope. When she was born, she was a healthy, happy and beautiful girl, but everything changed when the first signs of disease appeared. She started crying often, became capricious, and we noticed changes in her eyes, which led us to consult the doctor. 😭

After the examination, we were given a terrible diagnosis: bilateral retinoblastoma - a malignant tumor of the retina in the last stage. 😢 This is a rare disease, and the chances to save her eyes would be very small if we had not found a clinic that can help. In Russia, we were offered to remove the eyes, but we are not ready to give up, even if it means fighting to the last breath. We found a clinic in Lausanne, where there is a chance to recover the eyes and save our girl. 🌟

We have already made all the medical tests and received an invitation for treatment, but the cost of treatment is 2,150,000 rubles - an amount that we cannot cover ourselves. 🥺

Please help save our girl! Every contribution you make is a chance for the future for our baby! She deserves to live a full life, play, have fun and grow like all other children. 🙏💖

Please, don't stay indifferent. Your help can save her life! 💕

🙏 😭🆘 My name is Natasha, and my husband's name is Andrey. We live in St. Petersburg. We have three children. Andrey is the third long-awaited child. He was born on June 7, 2019.

Diagnosis: Congenital heart defects Hypoplasia of the left heart. Atresia of the mitral and aortic valves. Severe hypoplasia of the ascending aorta.

Complications: Left jugular vein thrombosis, left congenital anomaly of the heart structure and left bidirectional cavopulmonary anastomosis. Thrombosis of the femoral arteries and veins. Pulmonary hypertension.

Condition after surgery in the St. Petersburg State Healthcare Institution "CHILDREN'S CITY MULTIDISCIPLINARY CLINICAL SPECIALIZED CENTER OF HIGH MEDICAL TECHNOLOGIES” (Children's City Hospital No. 1)

St. Petersburg City:

1. Hybrid procedure 2019

2. Norwood and Glen operation 2019

3. Balloon angioplasty of aortic recoarctation 2019, 2020

The pregnancy was going well, but at 22 weeks, during a routine ultrasound, we unexpectedly saw that the left ventricle of the heart was much smaller than the right. We went to St. Petersburg, where Andryusha was given a terrible diagnosis: a severe heart defect: Hypoplasia of the left heart. It was a big shock for us. I never thought that this could happen to us! The cardiologist said that we needed to go through a 3-stage heart correction - Norwood - Glen - Fontan. We were sent to the Pediatric Academy to give birth. On June 7, 2019, Andryusha was born, he was immediately taken to intensive care, they only let him kiss him once. On the 5th day, Andryusha underwent Rashkind surgery, during which a stand was installed in the heart. He was in intensive care for a week, then we were transferred to the department together, I tried to feed him from a bottle. A week later, we were discharged. We returned to our city, bought a pulse oximeter to monitor the saturation, Andryusha had low saturation (oxygen level in the blood was at 85%, while normal indicators should be at least 95%), we had to constantly monitor it so that it did not decrease. When Andryusha turned 4 months old, we miraculously got to the Children's City Hospital No. 1. There, the best doctors performed the Norwood-Glen operation on Andryusha, the operation went according to plan. But after a while, it turned out that Andryusha's left vena cava was thrombosed in the heart, the entire left side from the neck to the chest was swollen. Andryusha was in intensive care, they could not take him off the ventilator for a very long time, he was fed through a tube that was inserted into his nose. I came to him in intensive care, held his hand, talked to him. It was very hard to see him suffer, from a cheerful, always smiling boy, he turned into a suffering child with an absent look. But finally, after a month and a half, Andryusha was transferred to the department, now we were together. Recovery was very difficult! They brought Andryusha to me with an oxygen mask, without a mask, the saturation was falling, with a tube, he stopped eating from a bottle, without a voice, because of the artificial ventilation, his voice practically disappeared, he cried very quietly and was always suffering, he was so bad that he could not sleep for a long time. Every three hours began with me trying to feed him from a bottle with formula, but he did not want to, he forgot how to swallow, I had to pour the formula into him through a tube. It was very hard, I practically did not sleep, but we managed. After two and a half months of trying to start eating from a bottle, we decided to try to start feeding him with porridge and jars of baby food from a spoon. And finally Andryusha began to eat, my joy knew no bounds! For the night, I bought a special bottle with a spoon and fed him porridge at night. Little by little, Andryusha recovered and we were authorized to go home, we stayed in the department for three and a half months.

The whole family met us at home, the children surrounded Andryusha with love and care and he began to develop like a normal child. At two years old, Andryusha fell ill with pneumonia, we were admitted to the 5th city hospital of St. Petersburg, we had already moved to St. Petersburg. There, Andryusha was diagnosed with the RS virus. Pneumonia and the RS virus greatly affected Andryusha's saturation, he could only lie on the bed, they even brought us an oxygen mask to breathe oxygen. He had a very hard time with this disease, there was even a moment when they wanted to put him in intensive care. After discharge, due to low saturation, we were admitted to the Children's City Hospital No.1, where Andryusha underwent angiography, they wanted to increase the branches in the heart so that it would be possible to perform a Fontan operation. But, unfortunately, nothing could be done, because the femoral arteries were thrombosed. Andryusha recovered and we were discharged home. In the winter of 2024, we were again hospitalized due to decreased saturation, because we caught a virus. When Andryusha is sick, saturation decreases, sometimes when there is a very strong virus or bacteria, it decreases to 60-70. Again we were admitted to the Children's City Hospital No. 1, where Andryusha again underwent angiography. This time, miraculously, the doctors were able to get into Andryusha's heart, but it turned out that he had high pressure in the pulmonary artery system

and small branches in the heart, so the Fontan operation is impossible!

We were sent home, being prescribed drug therapy.

Andryusha is growing up as a very inquisitive child! He is very kind and affectionate, constantly showering his mom and dad with kisses. He loves to spend time with his family at the dacha, where we plant, relax and swim together. He loves to go fishing with his beloved brother. First, they rummage through the entire area in search of worms, and then go to the pond. This year, Andryusha also learned to ride a bike, but, unfortunately, he cannot ride for a long time, he gets tired very quickly, and has to constantly stop to rest.

Andryusha really loves going to the pool, he learned to dive and swim with a noodle. But because of low saturation, he does not swim very much, he gets tired quickly, but he still likes it very much!

Andryusha's favorite animal is a cat, our cat is called Barsik! Andryusha loves him very much, lies down next to him and strokes him, and the cat purrs. Andryusha plays with the cat with a rope at the end of which is a mouse, the cat runs after the mouse, and Andryusha laughs.

"When I grow up, I will be a policeman to protect people from villains!" - says Andryusha!

Andryusha and I go to the rehabilitation center, where Andryusha has classes: therapeutic physical education: he really likes to do physical education and likes his teacher, whose name is also Andrey, he attracts Andryusha so much that he constantly laughs.

🆘⚠️I am the mother of a little girl, Ekaterina Vinogradova, from Kobrin. My daughter has SMA (Spinal Muscular Atrophy Type 2), and the disease causes atrophy of the muscles of the whole body, ⚠️ swallowing and breathing. Katyusha will be 7 years old on September 1. Katyusha has already lost the ability to walk. Katyusha was diagnosed in December 2019. An expensive drug, has been developed for this, which costs more than millions of dollars 💲 US dollars. The drug is administered up to 21 kg. Katyusha already weighs 17 kg. We ask all caring people to help Katyusha collect money for an injection. We will be grateful in advance for your help. Together we can save Katyusha's life.❗