"I hold his hand — and pray that his heart doesn't stop…" 💔🙏 I am Tikhon's mother 👩👦 Our son has a complex heart defect 💔, he has a single ventricle, organs are mirrored 🪞, the heart is on the right, but left-formed ❤️. We have no spleen (since birth) ❌🧫 Due to its absence, there is a high risk of infection, sepsis 🦠. We also have thick blood 🩸, but according to the tests, there is no blood mutation 🔬. Now our son's saturation is 80-83% 📉. It is maintained due to the open flow in the pulmonary artery. It is difficult for our son to walk long distances 🚶♂️💨, to participate in active games 🎯 - shortness of breath appears, lips, arms, legs 💙turn blue. He gets very tired, and it is visible on him 😔. Doctor Pak Vitaly Anatolyevich is ready to take us for a Fontan operation, the cost of which we cannot afford is 14500 🏥 — this is the final and most important operation 🛑. The whole future life of our son depends on it 🙏👦. When we were 6 months old 👶, we had our first operation (called Glenn). After being transferred to intensive care, my son had an emergency second operation — they cleaned out clots 🏃♂️💉.After that, the doctor said that he left the current opened in the pulmonary artery, and it will need to be closed during Fontan operation🔒. The condition after Glenn was very serious 😓. The doctors did not give any hope 😢 — our defect has gathered in the most terrible way ... as the doctors themselves say. Now we have to undergo Fontan operation 😣. And there will be complications... But already on the lower part of the body, and this is even more dangerous ⚠️ During the first operation, my son was swollen like a balloon 🎈 - the entire upper part of the body was swollen. But these are the consequences... Now our time is like a time bomb ⏳💣. We live every day as if it were our last 🌅... because the heart may not withstand the current load 💔 Please HELP us raise the amount necessary for the surgery …

I am a father. And every day I watch my daughter Katya cling to life.
July 5 — 10th day after CAR-T cell injection 💉⚡️
Since the first day, I have been living in anxiety, waiting — will she hold on? Will we hold her?

July 1, on the 6th day after the injection, a cytokine storm began. 💥🔥
The temperature was jumping, the pain was wringing from the inside, we were losing her right before our eyes...
This hellish state lasted for several days. We did not sleep, did not eat — we just watched her fight.
Today the storm is over. The temperature has stabilized 🌡️, the pain has subsided. 🙏
But this is not the end. This is a respite.

Katya is currently undergoing powerful therapy:
— antibacterial 🦠
— antiviral 🧬
— antifungal ☣️
Test results are critical. 📉
Immunity is almost at zero. Any infection is mortally dangerous.
She lives under IV drips, under observation, under threat of every second. 😷💊

We pray for Katya's health 🙏
We pray for the doctors who fight this shadow, for the Benefactors who do not let us fall...
But prayers are not everything. We hold her on this side of life with our hands, day after day.

Katya's condition is stable now, but very fragile. 🩶
Next week - the decisive puncture and bone marrow examination. 🧫
They will show - is there an effect from CAR-T therapy, and whether it is possible to move on.
Will there be a next stage? Or did everything go wrong? We don't know. But we're afraid. We're waiting. We're preparing for anything. ⏳💔

‼️ MY BABY IS DYING ‼️ HE IS ONLY 6 MONTHS OLD 💔👶 ACUTE LYMPHOBLASTIC LEUKEMIA ⚠️ BLOOD CANCER ⚠️ HE MAY NOT LIVE UNTIL TOMORROW 😭 My son's name is Salmon🧸 He was born on October 14, 2024 🎂And already in January 2025 we were told something terrible - cancer 😢 He is undergoing chemotherapy 💉, is in the Morozov hospital 🏥, his tiny body is weakening every day... Chemical therapy is destroying everything inside him. Side effects torment him every day 🤒 But without a bone marrow transplant 💔 there is no chance at all... The amount to save my child is 1.195,000 rubles 💰 For us, this is an impossible amount 😔Funds have already helped 🙏, but now we are in a hopeless situation, only you can help... 🆘🆘🆘 We are desperately asking for help! 🆘🆘🆘 Every kopeck you give is a drop of life for Salmon 🩸He's little... he shouldn't die... 💔👼 Please don't pass by... 👩👦 He's our only baby... our air, our soul... HELP SAVE HIS LIFE🙏😭💖 ❤️ SAVE HIS HEART. SAVE HIS LIFE ❤️

Vasya was born such a healthy, such a sweet baby... 🌟 Everything was fine, and we were happy, because our little miracle child grew and developed like all children. But from 8-10 months we began to notice that something was wrong... 😢 He began to lag behind in physical development: he started walking late, often fell, got tired faster than others. On playgrounds, he couldn't climb the children's slide, didn’t ride a scooter or a bike like all children... It was so painful to see that he couldn’t do what every baby does! 💔We turned to doctors, neurologists, took massage courses, drank nootropics, but all this did not bring the long-awaited improvements. And one day, when Vasya started having long-term gastroenteritis, we took tests, and the results were terrible... 😱 The ALT (alanine aminotransferase) and AST (aspartate aminotransferase) levels were abnormally high, and the doctors suspected hepatitis. But that was just the beginning. It soon turned out that we had even more terrible news: we suspected muscular dystrophy... 😢 We took a genetic test, and the results were a terrible sentence... It was the diagnosis: Duchenne muscular dystrophy. I couldn't believe it... My heart broke when I heard these words... 💔From that moment on, everything changed. Our world turned upside down. But even in this crazy and terrible world, a glimmer of hope appeared. 🌈 In 2023, the Elevidys gene therapy was developed, which can stop this terrible disease. It helps to "correct" the gene that is responsible for the production of the dystrophin protein. This treatment can save our baby's life! 💖But here's the problem... We don't fall under the age restrictions, because Vasya is already 7 years old, and the "Circle of Good" foundation purchases the gene therapy only for children aged 4 to 6. 😔 We are beyond the limit, and this opportunity is literally slipping away from us... But we found a clinic in the UAE, in Dubai, at Medcare Women & Children's Hospital, which is ready to provide treatment at our expense. At the clinic, the cost of treatment is 1,200,000 rubles. We need to raise this amount as soon as possible. Every minute counts... If Vasya ends up in a wheelchair, the medicine will no longer help. 😞💔Now Vasya can still move, but his strength is fading. He can't walk long distances, he needs help on the stairs to get dressed and undressed... When we first learned about the diagnosis, we had to take Vasya out of kindergarten because he couldn't cope with the physical activity. He often fell, and I saw how much pain and hard it was for him. 😓 But Vasya doesn’t give up! He attends pre-school classes, works with a speech therapist, goes to the pool… But every day it hurts me so much to watch him suffer, to see him say: “Mom, I’m tired…” 😢Our Vasya is the most affectionate, kind and gentle boy. 🌷 He is always ready to hug and share joy. He loves to make up fairy tales, especially about dragons, and watches cartoons about animals and space with great interest. 🌌 He adores his dog Lisa, he is always the first to grab the leash, walk her, play with her! 🐶 But the worst thing for me is that Vasya, like any other child, loves to walk. But very soon he may lose this opportunity, and I can’t imagine how it will be… 😭 I see how he suffers, climbing the stairs, and his every word “Mom, I’m tired…” pierces my heart like a knife… 💔I don’t know how to live with this pain and hopelessness, but I can’t give up. I will fight for my son until the very end! 💪 I believe that a miracle is possible! 🌟 When I learned about the possibility of saving Vasya, my heart warmed again. Maybe this world is not so cruel if we fight and don’t give up! 🌈I ask you to help us, help to save Vasya. His life depends on this treatment, and I believe that together we can work a miracle! 🙏💖