Urgently

🆘 😭My son can sleep forever! He has a rare genetic 🧬 fatal disease. Duchenne myopathy! I beg you to HELP 🆘 😭🆘 😭Mój syn może spać wiecznie! Choruje na rzadką genetyczną 🧬 śmiertelną chorobę. Miopatia Duchenne’a! proszę o POMOC 🆘 😭. 🆘 😭Мой сын может спать вечно! У него редкое генетическое 🧬 смертельное заболевание. Миопатия Дюшенна! Умоляю вас ПОМОГИТЕ 🆘 😭


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Новости Виктора🙏🏻 Миопатия Дюшенна🧬Wiadomości Victora🙏🏻Miopatia Duchenne’aVictors news🆘 Duchenne myopathy

Ivko ViktorIvko VictorИвко Виктор, 8 years old8 lat8 лет

Диагноз

🆘 😭My son can sleep forever! He has a rare genetic 🧬 fatal disease. Duchenne myopathy! I beg you to HELP 🆘 😭🆘 😭Mój syn może spać wiecznie! Choruje na rzadką genetyczną 🧬 śmiertelną chorobę. Miopatia Duchenne’a! proszę o POMOC 🆘 😭. 🆘 😭Мой сын может спать вечно! У него редкое генетическое 🧬 смертельное заболевание. Миопатия Дюшенна! Умоляю вас ПОМОГИТЕ 🆘 😭.

Цель сбора

Fundraiser for injection❕ Zbiórka na wstrzyknięcie Инъекция

Документы
Собрано:
570 $
Сумма сбора:
22500 $

History

🆘 Diagnosis Duchenne muscular dystrophy is insidious and it has its own clear plan to destroy the child. 

 

THAT'S WHY I SCREAM EVERY DAY, I ASK, I BEG - NO TIME LEFT. 

🧬Now he is 8 years old and the disease is persistently sending its greetings, on the video I showed the key symptoms that Vityusha unfortunately already has: 

The calf muscles are enlarged - and this is already the replacement of muscles with fatty tissue 

Duck-footed gait - it seems as if he is waddling + walking on tiptoes

Hyperlardosis - you can see in the video how Vityusha's back is strongly arched. 

Inability to run and jump - yesterday we played catch up with Vitya, this is the speed of an ordinary child  who is just walking, but he cannot jump at all. 

Falling for no reason at all - the heart just contracts, it is uncontrollable. Imagine how you constantly fall from your height onto your feet and butt. It hurts😭 

Stairs - he can only climb up using the Govers maneuver: leaning his hands on his feet, he cannot get up from his left leg on his own now.  

 

And the daily - "Mom, I'm tired" - this is also an insidious Duchenne, manifested by rapid fatigue. 

 

😭ALL THIS COMES FROM MUSCLE WEAKNESS. DUCHENNES MYODYSTROPHY - the #1 killer of boys.  is a chance to stop everything 

And I want to tell you what Vityusha can't do or what he is deprived of when the diagnosis is a huge enemy... 

He CAN'T squat like everyone else and look at bugs and spiders with children, for example, or just collect mosaics on the floor. 

 

When he sees the stairs, I see horror in his eyes, because it is VERY HARD to climb, this is clearly visible in one of the latest videos. 

He CAN’T climb in and out of a car on his own, the risk of falling out of it is very high. 

Vitya CAN’T fully live the life of an ordinary child now, who needs to be everywhere and always, to be naughty,  to try new things, he is only 8 years old, now is the time to enjoy the life in full.  

In fact, it is very hard to watch, especially on some playground, when your child simply CANNOT climb onto a swing on his own, without the help of an adult😭 

And he is only 8... and what next? And then, if we do not find help among all of you and do not raise these 2500000$ for a CHANCE to live a full life - it will only get worse. Then only a wheelchair and a lying position with a bunch of devices that support the heart and breathing. And then end... 

 

I ask you for help, help close the fundraiser as quickly as possible🆘 

 
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