Urgently

❣️⚠️I BEG YOU FOR HELP⚠️❣️ MY SON'S INTERNAL ORGANS MAY NOT BE ABLE TO HOLD ON ‼️HIS LEGS ARE ALSO ATROPHIC😭TERRIBLE GENETIC DIAGNOSIS "DUCHENNE DYSTROPHY"😢 I BEG YOU TO SAVE MY SON‼️❣️⚠️BŁAGAM O POMOC⚠️❣️ ORGANY WEWNĘTRZNE MOJEGO SYNA MOGĄ NIE BYĆ W STANIE SIĘ UTRZYMAĆ ‼️JEGO NOGI SĄ RÓWNIEŻ ZANIKOWE 😭 STRASZNA DIAGNOZA GENETYCZNA „DYSTROFIA DUCHENNE'A”😢 BŁAGAM URATUJCIE MOJEGO SYNA‼️.❣️⚠️Я МОЛЮ ВАС О ПОМОЩИ⚠️❣️ ВНУТРЕННИЕ ОРГАНЫ МОЕГО СЫНА НЕ МОГУТ ПРОСТО ТАК ДЕРЖАТЬСЯ‼️НОЖКИ ЕГО ТАК-ЖЕ АТРОФИРУЮТСЯ😭СТРАШНЫЙ ГЕНЕТИЧЕСКИЙ ДИАГНОЗ "ДИСТРОФИЯ ДЮШЕННА"😢УМОЛЯЮ СПАСИТЕ МОЕГО СЫНА‼️.

Lovygin VasilyLovygin VasilyЛовыгин Василий, 7 years old7 lat7 лет

Диагноз

❣️⚠️I BEG YOU FOR HELP⚠️❣️ MY SON'S INTERNAL ORGANS MAY NOT BE ABLE TO HOLD ON ‼️HIS LEGS ARE ALSO ATROPHIC😭TERRIBLE GENETIC DIAGNOSIS "DUCHENNE DYSTROPHY"😢 I BEG YOU TO SAVE MY SON‼️❣️⚠️BŁAGAM O POMOC⚠️❣️ ORGANY WEWNĘTRZNE MOJEGO SYNA MOGĄ NIE BYĆ W STANIE SIĘ UTRZYMAĆ ‼️JEGO NOGI SĄ RÓWNIEŻ ZANIKOWE 😭 STRASZNA DIAGNOZA GENETYCZNA „DYSTROFIA DUCHENNE'A”😢 BŁAGAM URATUJCIE MOJEGO SYNA‼️.❣️⚠️Я МОЛЮ ВАС О ПОМОЩИ⚠️❣️ ВНУТРЕННИЕ ОРГАНЫ МОЕГО СЫНА НЕ МОГУТ ПРОСТО ТАК ДЕРЖАТЬСЯ‼️НОЖКИ ЕГО ТАК-ЖЕ АТРОФИРУЮТСЯ😭СТРАШНЫЙ ГЕНЕТИЧЕСКИЙ ДИАГНОЗ "ДИСТРОФИЯ ДЮШЕННА"😢УМОЛЯЮ СПАСИТЕ МОЕГО СЫНА‼️..

Цель сбора

Expensive treatment at Medcare Women & Children’s Hospital (UAE, Dubai) is required⚠️Wymagane jest kosztowne leczenie w szpitalu Medcare Women & Children’s (ZEA, Dubaj)⚠️Требуется дорогостоящее лечение в клинике Medcare Women & Children’sHospital (ОАЭ, Дубай)⚠️/span>

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History

Vasya was born such a healthy, such a sweet baby... 🌟 Everything was fine, and we were happy, because our little miracle child grew and developed like all children. But from 8-10 months we began to notice that something was wrong... 😢 He began to lag behind in physical development: he started walking late, often fell, got tired faster than others. On playgrounds, he couldn't climb the children's slide, didn’t ride a scooter or a bike like all children... It was so painful to see that he couldn’t do what every baby does! 💔We turned to doctors, neurologists, took massage courses, drank nootropics, but all this did not bring the long-awaited improvements. And one day, when Vasya started having long-term gastroenteritis, we took tests, and the results were terrible... 😱 The ALT (alanine aminotransferase) and AST (aspartate aminotransferase) levels were abnormally high, and the doctors suspected hepatitis. But that was just the beginning. It soon turned out that we had even more terrible news: we suspected muscular dystrophy... 😢 We took a genetic test, and the results were a terrible sentence... It was the diagnosis: Duchenne muscular dystrophy. I couldn't believe it... My heart broke when I heard these words... 💔From that moment on, everything changed. Our world turned upside down. But even in this crazy and terrible world, a glimmer of hope appeared. 🌈 In 2023, the Elevidys gene therapy was developed, which can stop this terrible disease. It helps to "correct" the gene that is responsible for the production of the dystrophin protein. This treatment can save our baby's life! 💖But here's the problem... We don't fall under the age restrictions, because Vasya is already 7 years old, and the "Circle of Good" foundation purchases the gene therapy only for children aged 4 to 6. 😔 We are beyond the limit, and this opportunity is literally slipping away from us... But we found a clinic in the UAE, in Dubai, at Medcare Women & Children's Hospital, which is ready to provide treatment at our expense. At the clinic, the cost of treatment is 1,200,000 rubles. We need to raise this amount as soon as possible. Every minute counts... If Vasya ends up in a wheelchair, the medicine will no longer help. 😞💔Now Vasya can still move, but his strength is fading. He can't walk long distances, he needs help on the stairs to get dressed and undressed... When we first learned about the diagnosis, we had to take Vasya out of kindergarten because he couldn't cope with the physical activity. He often fell, and I saw how much pain and hard it was for him. 😓 But Vasya doesn’t give up! He attends pre-school classes, works with a speech therapist, goes to the pool… But every day it hurts me so much to watch him suffer, to see him say: “Mom, I’m tired…” 😢Our Vasya is the most affectionate, kind and gentle boy. 🌷 He is always ready to hug and share joy. He loves to make up fairy tales, especially about dragons, and watches cartoons about animals and space with great interest. 🌌 He adores his dog Lisa, he is always the first to grab the leash, walk her, play with her! 🐶 But the worst thing for me is that Vasya, like any other child, loves to walk. But very soon he may lose this opportunity, and I can’t imagine how it will be… 😭 I see how he suffers, climbing the stairs, and his every word “Mom, I’m tired…” pierces my heart like a knife… 💔I don’t know how to live with this pain and hopelessness, but I can’t give up. I will fight for my son until the very end! 💪 I believe that a miracle is possible! 🌟 When I learned about the possibility of saving Vasya, my heart warmed again. Maybe this world is not so cruel if we fight and don’t give up! 🌈I ask you to help us, help to save Vasya. His life depends on this treatment, and I believe that together we can work a miracle! 🙏💖