Savina EkaterinaSawina JekaterinaСавина Екатерина, 14 years old14 lat14 лет
Acute lymphoblastic leukemia, extramedullary relapse with bone tissue involvement, aggressive exacerbationOstra białaczka limfoblastyczna, nawrót pozaszpikowy z zajęciem tkanki kostnej, agresywne zaostrzenieОстрый лимфобластный лейкоз, экстрамедуллярный рецидив с поражением костной ткани, агрессивное обострение.
Acute lymphoblastic leukemia, extramedullary relapse with bone tissue involvement, aggressive exacerbationOstra białaczka limfoblastyczna, nawrót pozaszpikowy z zajęciem tkanki kostnej, agresywne zaostrzenieТребуется проведение car-t, трансплантация костного мозга, иммунотерапия в Китае
Story
I am a father. And every day I watch my daughter Katya cling to life.
July 5 — 10th day after CAR-T cell injection 💉⚡️
Since the first day, I have been living in anxiety, waiting — will she hold on? Will we hold her?
July 1, on the 6th day after the injection, a cytokine storm began. 💥🔥
The temperature was jumping, the pain was wringing from the inside, we were losing her right before our eyes...
This hellish state lasted for several days. We did not sleep, did not eat — we just watched her fight.
Today the storm is over. The temperature has stabilized 🌡️, the pain has subsided. 🙏
But this is not the end. This is a respite.
Katya is currently undergoing powerful therapy:
— antibacterial 🦠
— antiviral 🧬
— antifungal ☣️
Test results are critical. 📉
Immunity is almost at zero. Any infection is mortally dangerous.
She lives under IV drips, under observation, under threat of every second. 😷💊
We pray for Katya's health 🙏
We pray for the doctors who fight this shadow, for the Benefactors who do not let us fall...
But prayers are not everything. We hold her on this side of life with our hands, day after day.
Katya's condition is stable now, but very fragile. 🩶
Next week - the decisive puncture and bone marrow examination. 🧫
They will show - is there an effect from CAR-T therapy, and whether it is possible to move on.
Will there be a next stage? Or did everything go wrong? We don't know. But we're afraid. We're waiting. We're preparing for anything. ⏳💔
Savina EkaterinaSawina JekaterinaСавина Екатерина, 14 years old14 lat14 лет
Acute lymphoblastic leukemia, extramedullary relapse with bone tissue involvement, aggressive exacerbationOstra białaczka limfoblastyczna, nawrót pozaszpikowy z zajęciem tkanki kostnej, agresywne zaostrzenieОстрый лимфобластный лейкоз, экстрамедуллярный рецидив с поражением костной ткани, агрессивное обострение.
Acute lymphoblastic leukemia, extramedullary relapse with bone tissue involvement, aggressive exacerbationOstra białaczka limfoblastyczna, nawrót pozaszpikowy z zajęciem tkanki kostnej, agresywne zaostrzenieТребуется проведение car-t, трансплантация костного мозга, иммунотерапия в Китае
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