Neuroblastoma stage 4Neuroblastoma stadium 4Нейробластома 4 стадии.
Veronica KamlyginaWeronika KamlyginaВероника Камлыгина, 4 years4 lata4 года
Neuroblastoma stage 4Neuroblastoma stadium 4Нейробластома 4 стадии..
Bone marrow transplant and immunotherapy with Dinutuisimab-Beta are requiredKonieczne jest przeszczepienie szpiku kostnego i immunoterapia Dinutuisimabem-Beta.Требуется трансплантация костного мозга, и иммунотерапия препаратом Динутуисимаб-Бета
History
We gave birth to our daughter — and then we began to lose her.
This isn’t a story about a happy childhood.
This is a story where there are IVs instead of toys 🧪, and a diagnosis instead of bedtime stories 💔.
Veronika is our youngest 👧. She has an older sister, Alesya, who’s 8 👱♀️. We always believed that a real family means at least two children 👨👩👧👧. The pregnancy went well 🤰. Veronika was born right on time — January 6, 2021 — on the eve of Christmas 🎄. We had picked her name long before she was born.
Our baby girl started talking early, learned all her letters 🔠 and numbers 🔢 by 20 months, loved books 📚, and could count.
Always smiling 😊. Always bright 🧠.
And then came December 2024 — and everything started falling apart...
Leg pain 🦵. Sudden fevers 🌡️. Doctor after doctor told us it was just reactive arthritis. But it kept getting worse.
When a lump appeared on her head, they said it was a hematoma 🤕. Even the ultrasound didn’t find anything malignant. But we saw how fast our child was fading 😢.
Mom begged the doctors to check for cancer. They shook their heads: “No way...”
Only after we insisted, they hospitalized her 🏥. And from there — straight to the oncology center.
Diagnosis: neuroblastoma of the retroperitoneal space 🧬.
Metastases in the bone marrow. Bone lesions 🦴. It was already deep inside.
That’s when our war began ⚔️.
She’s already gone through 6 rounds of chemo 💉.
Her bone marrow responded, the tumor shrank — but that’s just the beginning.
Ahead: surgery 🔪. High-dose chemotherapy with a bone marrow transplant 🧫.
And most importantly — immunotherapy with Dinutuximab Beta (Qarziba).
This drug saves lives — but it’s not available in Belarus ❌.
The government doesn’t buy it. It’s simply not registered.
💰 Total cost of treatment: 14 645$.
Either you find this money…
Or you watch your child fade away 💔.
Veronika is braver than most adults.
She gets CT and MRI scans without anesthesia 🧠, holds test tubes during blood draws, never cries 🩸.
She fights cancer — and smiles 🌈.
Because she still doesn’t understand how expensive her life is 🧸.
But we do.
Every day is like gold ⏳. Every exam feels like stepping on a mine.
We have no other option 🚫.
Either we raise this sum — or the disease will come back.
And there won’t be a second chance 🕳️.
Veronica KamlyginaWeronika KamlyginaВероника Камлыгина, 4 years4 lata4 года
Neuroblastoma stage 4Neuroblastoma stadium 4Нейробластома 4 стадии..
Bone marrow transplant and immunotherapy with Dinutuisimab-Beta are requiredKonieczne jest przeszczepienie szpiku kostnego i immunoterapia Dinutuisimabem-Beta.Требуется трансплантация костного мозга, и иммунотерапия препаратом Динутуисимаб-Бета
34 $
14645 $